Parker and Pred Head : Is pred head contagious... - PMRGCAuk

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Parker and Pred Head

Estellemac profile image
41 Replies

Is pred head contagious? Parker seems to have become much more gormless since he gave up his hobby at Royal Mail to spend quality time being nagged by M’Lady to do jobs on his ever increasing To Do List.

M’Lady is the thick one normally and we seem to have a role reversal situation at present. From collecting prescriptions and only bringing half of it back to “Where did I put that…….” what he had in his hand 2 minutes ago. He’s driving me mad.

I’m on 8mg pred and every time I reduce it all goes Pete Tong. I am trying to sort out the OA at the moment as GPs can’t multitask and look at two things at once even when related to getting a better quality of life.

Thing is Parker’s Man Goggles don’t pick up on day to day things either like the washing up needs doing as we’ve run out of stuff to eat off or cook with. I have been sat in the comfy chair in the living room grumpily chuntering at the paper or throwing things at the tele as it’s rubbish so I can’t see the kitchen sink. There’s a fair bit of detritus piling up around me too. But the man goggles help him ignore that too.

Problem is it’s not just PMR now it the other hip and sacroiliac joints need fixing. The pred has weakened the muscles after 8 years but juggling both OA and PMR is hard. Today my personal funicular railway up to the second floor of my house and the toilet has lost the will to work. Stairs are not my friend with a dodgy hip, half a back, floppy muscles and PMR causing all sorts of pain in my upper arms and shoulders with lower pred. Parker has also flatly refused to morph into Stannah Stairlift man and carry me up and down the stairs he says it not in his pay grade? He did like the idea of Tangocharlies back brace, a pulley and winch system. Must say he has given the problem some thought albeit mental and delusional. I have called a man to fix it.

Now should I even talk about the new auto immune condition I have acquired possibly related to long term Lanzoprozole use for steroids. Ok then if you insist it’s Microscopic Colitis. So only having an upstairs toilet combined with poor mobility is even more frustrating. Parker does recognise the urgency of getting M’Lady upstairs fast during a colitis episode even with the man goggles on. He quickly gets out of the way as I scramble on all fours towards the stairs. Strange how one pain fades as another takes precedence. This condition is a bit like PMR. How you ask? It’s not terminal just stops you socialising, going out and have an active life. You have muscle aches and pain (how do you know you’ve got more?) and fatigue. But as it’s not going to kill you so the Gastroenterologist signed me off as it wasn’t too bad that day? That’s on the back boiler for now too

This week I am waiting to see if they will replace my hip soon and fuse my sacroiliac joints. Probably within a year. Then I can address the Colitis. Parker is erecting a toilet tent in the hall with a very nice bucket while we wait for Stannah man to fix the chariot. Weird when PMR is least of your problems isn’t it?

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Estellemac profile image
Estellemac
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41 Replies
PMRpro profile image
PMRproAmbassador

Oh it is good to have you both back - even if it is for all the wrong reasons!!!

SnazzyD profile image
SnazzyD

So glad to hear you and Parker are back! Perhaps Parker should consider an exercise plan to get that lift up the stairs better executed. After all he does seem to have time on his hands. Sorry to hear that your travails aren’t any easier both of you.

Estellemac profile image
Estellemac in reply toSnazzyD

I will take your ideas and sneak them in to conversation thanking you muchly.

Chrob profile image
Chrob

Yes love , really weird . Missed you and Parker .

Rugger profile image
Rugger

How you manage to keep your sense of humour ".....when all about you....." I'll never know! 🏅

My analysis of Parker's present condition is that he is so worried about his Lady and feels helpless to take away her pain - he needs those Man Goggles to see her as she used to be. 🥽 🦸‍♂️

Hope the real Stannah Stairlift man appears ASAP.

Estellemac profile image
Estellemac in reply toRugger

Thank you for the link to man goggles. That cheered me up.

Lookingforideas profile image
Lookingforideas

OMG!!!! I’ve missed you two & loved the revisitation of the bold Parker, but, wishing for you the situation was better 😳 - I’m doing good - still on 0 pred - and back to playing (aka ‘attending’ & waving my bat about but missing the ball ) Padel tennis in Spain, but will be back in the uk from Christmas for a couple of months, so maybe we’ll manage a get together while I’m there? Good luck with the stannah!!! Xx

random901 profile image
random901

Thank you for making me laugh this morning 😁

Angelsmummy profile image
Angelsmummy

OH my,how I laughed when I read your post🤣🤣🤣🤣🤣NOT at you but the wonderful way you convey your awful,many problems.,How are you staying SO upbeat?Definately a half glass full person.,The thought of you sitting on a bucket in a tent made me howl!You should really become a short story writer,you would make a fortune I tell you!Hope things get sorted for you before long regarding the Chariot of Fire and health problems.xxxBest Wishes.x🤣🤣🤣🤣🤣😪🤞🏼😜💐💐

123-go profile image
123-go

PLEASE write a book or at least a series of short stories! As they say on TV talent shows, “You don’t know how good you are!” To be able to retain a sense of humour when in pain, etc, is remarkable. I wish you and the stairlift well and look forward to a bright new chapter. 🥰

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good to see you and himself again… and hope you get the “lift” you need [in all senses] for a better QOL.. 😊

Poshdog profile image
Poshdog

🤣🤣🤣 OMG - how do you do it?? Xx

Pixix profile image
Pixix

thanks for the smiles on a wet & dreary day! S x

Angelsmummy profile image
Angelsmummy

Mine is the opposite,body is willing but dementia brain isn’t.Offers to make a cuppa,and all hell breaks loose,cupboard doors left open ,sugar for his tea everywhere.Takes me longer to clear up than if I had made it myself but at least he tries..Think they cannot multitask like us mere females.🤣🤣🌼😜

Estellemac profile image
Estellemac in reply toAngelsmummy

I can’t believe he doesn’t have more accidents with the cupboard doors being left open. He is a really good cook and does feed me when I ask. But sometimes the slippy trip stuff on the floor makes hobbling round the kitchen removing death traps feel like an hour of circuit training.

Angelsmummy profile image
Angelsmummy in reply toEstellemac

Don’t know about him having accidents.,I have white walls ,white kitchen units so with my blind left eye and MD in other it is a veritable minefield Have resorted to sticking coloured sticky circles on inside and outside of cabinet doors so at least I can see them!.,.As for black shoes left on black tiled floor,well!Even stuck circles on them too!Mental agility ,don’t think I will EVER get dementia,my brain has to work overtime!.,xxx🤣🤣🤣😪😱🌼😜

Estellemac profile image
Estellemac in reply toAngelsmummy

I think this behaviour to help us to practice patience as we age by a loving OH. However a true master of patience is only found up a mountain somewhere chanting mantra in a hermit cave.

Angelsmummy profile image
Angelsmummy in reply toEstellemac

I sometimes chant mantra but it ain’t often repeatable!🤬🤬🤬🤬😳xx🌼🤣

Numptybrain profile image
Numptybrain

I can’t stop laughing, not at you but the hilarious way you have portrayed this situation. Bless you, you have a lot going on and the thought of a bucket with a tent over it in the hallway! I’m creased again, poor Parker with his man goggles, you are right though. Thanks for cheering me up on this very miserable day.

Take care

Wendy xx

Koalajane profile image
Koalajane

oh welcome back. I hope things improve but please keep us informed in your very own way

Bcol profile image
Bcol

Would just like to point out that is not a statement that a) covers all men and b) certainly not all those on this site. I'll say no more or I may get grumpy.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

Good point... don't judge all by what you may have at home... perhaps one should have chosen more carefully at outset [or given better training !] 🤣😂

Estellemac profile image
Estellemac in reply toDorsetLady

38 years training and I asked myself when did it slip?🤔

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toEstellemac

It’s not only the training (that’s the easy bit and in your hands) -it’s the retaining as well! That’s receiver error! 😳

PMRpro profile image
PMRproAmbassador in reply toEstellemac

DId it ever stick at any point?

Estellemac profile image
Estellemac in reply toBcol

🤣🤣

Estellemac profile image
Estellemac

Ooh the garden! Parker thinks neat and tidy is for parks and tidying or trimming stuff wrecks the hedgehog habitat. We have 5 who come at night and bash each other about for the food. He sits with the wildlife cameras every morning watching their antics. He promised to move all the tat off my decking next year so I can sit in it but we shall see.

Hulotsholiday profile image
Hulotsholiday in reply toEstellemac

Hedgehogs are amazing. We have half a dozen throughout the season and the other day, I watched one take a piece of chicken meat from under the nose of a fox that was feasting on scraps. The fox takes bits and buries them for later in the mole mounds. There are three foxes visiting regularly, now safe from the cat who used to chase them out of the garden…but she lost her lymphoma battle last week.

Angelsmummy profile image
Angelsmummy in reply toHulotsholiday

Sad for you,xx🐈😪We too have hedgehogs,a lovely juvenile I had been feeding for weeks,and I was gutted to find her/him dead the other morning,but we also have a VERY Large one plus another juvenile so perhaps they are all related.Dont think the large one will get inside the box we have for him,might have to buy a small dog kennel!xx🤣🤣🌼😜

Hulotsholiday profile image
Hulotsholiday in reply toAngelsmummy

Thank you. I miss her every day. Hedgehogs can squish really flat so they should fit the house.🤞

Angelsmummy profile image
Angelsmummy in reply toHulotsholiday

I hope so,but we have very thick hedges also and we pile loads of leaves etc under them so hopefully they will stay but seeing as they can travel about 3 miles a night ,they might find better accommodation!Of course you miss your cat,they are part of the family.Our 2 are coming up to 14 ,will not replace them when they go,but will miss them terribly when their time comes.Sisters but they HATE each other!xx🐈🐈🌼😜

Whippetygirl profile image
Whippetygirl in reply toHulotsholiday

So sorry to hear about your cat, I lost one of my cats to this awful disease, my whippet developed Lymphoma at 4-1/2 years old, luckily I recognised the symptoms and with treatment fully recovered, she is 11yrs old now. x

Hulotsholiday profile image
Hulotsholiday in reply toWhippetygirl

Thank you. I have to be grateful that she didn’t appear to be suffering significantly. She chased a fox from the garden shortly before her end. I don’t know why I’m struggling so much with the loss of this one. There are still days when I end up in tears in the shop because I’ve seen cat food. The following week, the dog injured his spine and was semi paralysed with poor prognosis without surgery. The vet wanted an mri then surgery but at a centre over 100 miles away and he’d have been there for up to a fortnight. I couldn’t drive that distance so he said he’d try steroids. Fingers crossed, it’s a month now and he’s making a miraculous recovery. Mobility is nearly 100% and now he’s tapering off steroids! I’m pleased your whippet recovered. I believe if it’s recognised early the prognosis is pretty good. The symptoms are insidious; the cat only had weight loss and her bloods were normal. It was an ultrasound scan showed a mass and it didn’t respond. Thanks again. The kind words of strangers can be very uplifting.

Angelsmummy profile image
Angelsmummy in reply toHulotsholiday

Really hope doggie continues to make good progress.Of course you are going to be upset for a very long time,they are FAMILY,and quite honestly the way some of my family carry on I prefer the company of my fur babies!At least they don’t answer back!Had a really bad time about 3 weeks ago,German Shepherd nipped OH!SO out of character but OH has dementia and dog behaviourist told me that dogs pick up on medical conditions etc.Cried myself to sleep that night thinking shoukd I have my beautiful boy put to sleep( dog not OH.,) Consulted vet and asked if she could do an x ray on dogs hips as OH had stroked him very heavily when bite happened The upshot was that they found a massive skin infection under his armpits groins etc,hid by long fur!At least we know now why he bit,and I now brush him,not OH.Anyway,this is becoming all about me and it really shouldn’t,just letting you know that to be feeling like you do about your poor cat and the worry of doggie is quite understandable.Thinking of you ,xxx🤞🏼🐈💐🐕‍🦺😜

Hulotsholiday profile image
Hulotsholiday in reply toAngelsmummy

I’m truly humbled by your reply. You kindness is so thoughtful and appreciated. My heart goes out to you; to see your OH suffering with dementia must be unbearable at times and to have the conflict about how to deal with the dog issue, I’m so pleased you found the issue, so a blessing in disguise. Strangely, our dog (Jack Russell/beagle with short coat) started scratching in groin and armpits. It was vey inflamed and I thought it was a reaction to steroids but he’s got a staph infection causing skin lesions. He’s got antibiotic, anti scratch tabs and shampoo (£55 a bottle!) and it’s all clearing now. I hope you don’t have to shampoo your GS too often. But more importantly I hope it clears up. Thank you again.

Angelsmummy profile image
Angelsmummy in reply toHulotsholiday

Aaaaw Thankyou for you kind words.Seems you are a real animal lover like myself.Glad you got your dogggies problem sorted out.Such a worry when they are poorly isn’t it?GSD all good now,cleared up nicely but looks so strange with his bare belly instead of his flowing long coat!Problems,problems,but somehow we deal with them Dont we?Went to Drs yesterday,cortisone injection in wrist( DEFINATELY didn’t want the offer of an operation.,) and asked him to look at my “ bony spur”on shoulder.Turns out it isn’t that at all.He reckons I have broken my collar bone whilst turning over in bed,(I heard a crack and thought it was just OA) so got an x ray next week.Plus to add to it all he thinks I might have thyroid problems so bloods to be done as well.Oh,Happy Days eh? Think I might change my name to “ Lucky”!🤣🤣🤣💐🌼😜🐕‍🦺🐈🦮😱🤬🤬🤬sending kind thoughts to you,xx

Hulotsholiday profile image
Hulotsholiday in reply toAngelsmummy

Oh my goodness; you have one thing on top of another and none are trivial. As you say, there’s no option but to get on with it. I hope the X-ray and bloods help confirm diagnosis, so you can start any necessary treatment. I’ll be thinking about you and my very warm wishes. Doggies fur will soon grow and at least that’s sorted.

Angelsmummy profile image
Angelsmummy in reply toHulotsholiday

Cheers for that,,I’m ok,one of life’s survivors even if I moan a lot!🤣You just worry about yourself and your little doggie ok?My GSD finished last of antibiotics this morning so reckon he will be right fed up when there are no more to take camouflaged in cheese!😱xxx🌼🦮🐕‍🦺🐈

Hulotsholiday profile image
Hulotsholiday in reply toAngelsmummy

🤣🤣Our dog had his tabs in cheese too. He now sits by the fridge door waiting for the tub of Philly. In his dreams! They learn so quickly and he’s not even a young dog.

Angelsmummy profile image
Angelsmummy in reply toHulotsholiday

I have never had a GSD like our current one,he would eat and eat and eat…….ALL DAY if allowed!Think the trouble arose because he was “reward” trained.Maybe I could try that method on OH!🤣🤣OH very poorly this morning,very slurry speech and cannot get words out most of time.Did the FAST test,all seems good.Guess Dementia is just moving on a bit more quickly than we would like.Shall see how he is a bit later then if still concerned ,will phone 111.He has so many co morbities it is a struggle to differentiate at times.Heseens to sleep a lot of the time this last week or so.Anyway,why am I boring you with all this?😱Flujabs today,just hope he is well enough to have his.xxx🌼🐈🐕‍🦺😜

Bcol profile image
Bcol

Thank you.

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