I was struck with PMR last September. Couldn't even turn over in bed. My theory is that PMR was triggered by an inflamed insect bite that became a blister on my leg the size of a golf ball. I was doubly worried as my mother had lost her eyesight with GCA. Anyway I started on 15 mg pred. After a slight flare I went up to 20 mg and have been tapering since.
At first the prednisalone gave me a feeling of disorientation and slight dizziness. This has now gone. I've even lost weight, though I do have a puffy jaw and swollen ankles and legs. On the whole I've been feeling a lot better, though tired. However, at start of Spring I went in the garden to pull a few weeds and got about 10 more insect bites on my legs and thighs, even through thick socks and trousers. This time no blisters but my legs broke out in a scarlet rash of inflammation. Doctor put me on a course of antibiotics. Naturally I finished the course, but I did wonder later if the exaggerated inflammation might not have been caused by the PMR rather than an infection.
Nevertheless I continued to feel good and to taper slowly 1mg a month and had reached 9mg. Then. The day before yesterday, my left hip started to ache. Gradually this spread and got worse. Yesterday my left wrist joined the party. Last night it was so painful that I could hardly sleep. Today I can't use my left hand, it aches all the time and so do my hips. Yesterday and today I've increased the daily pred from 9mg back to 10mg. Thought anyone?