I am so fed up with the medical professions ignorance that I have decided to go it alone.
In May 2013 I was diognosed with GCA by my GP after suffering headaches for months and ending up with severe pain in my temples and taking to my bed with a fever which soaked the sheets.
She was brilliant and after taking blood which came back with results the same day with an ESR of 44 I was told to take 60 mg of Prednisolone straight away.
The result several hours later was miraculous, the temple pain vanished and for the first time in months I had no headache or neck pains.
Ten days later I attended the ophthalmology dept at the hospital and the Doctor confirmed GCA.
A couple of months later I saw a senior consultant at the Rheumatology dept who examined me who also said that I had GCA.
Three months later I Iearned that the same senior consultant had left the dept and I had been passed on to a new consultant.
She decided to write to my Doctor to say that because my inflammatory markers were in the normal range my temple pains were down to referred neck pains and that in her apinion I could,nt possibly have GCA.
After six months on steroids I managed to get down to 20 mg and then the PMR kicked in with a vengeance .
I developed dreadful pains in my hips,back,legs and in particular my knees, and felt dreadful with terrible tiredness and sweats.
My GP said to me, you certainly have PMR and was very supportive but unfortunately retired shortly afterwards.
It has been all downhill from then on with a further appointment to attend at the Hospital with yet another inexperienced registra asking me if I can raise my arms above my head and after replying YES he gave me his diognosis without examination or leaving his chair. YOU DO NOT HAVE PMR.
I have had enough of this utter incompetence and when I received an appointment from the rheumatology I said that I did not wish to see this consultant and was told to get a Doctors referral if I wanted any further appointment as I was now considered DISCHARGED.
I am now on my third GP in almost as many months and this one wants to know why I am still on steroids after 18 months as my blood results are normal, what an idiot.
I am now so utterly fed up with the lot of them that I have decided to self medicate and to hell with them.
I saw proffesor Dasguptor in April and he was very supportive he confirmed my diognosis of GCA/PMR and was very thorough in his examination.
I cannot see him at present because recent heart surgery has taken priority but I have reached the decision that these chronic conditions are enough to cope with without having to deal with this arrogant indifference and ignorance needless to say that I have completely lost faith in the Hospital and so called Doctors so I will soldier on alone.