I have been in hospital for the last week as I had such horrendous pressure in my head, neck and eyes, with visual disturbances in my left eye, have already lost peripheral vision in the left. My symptoms worsened when the ophthalmologist reduced the steroid dose to 40mgs from 60mg. his intention was to stop them as he thought there wa no way it was GCA @ 49 and he said he thought I had narrow angles my eyes and he planned to carry out an iridotomy last Monday. (His actual words were I just wouldn't take any more steroids, which I instantly queried that as I had been taking them for over 4 weeks I thought they needed to be tapered! To which he said I suppose so. After only thre days on the lower dose I was worse than ever so I went to the hospital in Swindon which has an ambulatory walk in assessment clinic. Thank goodnes I did the Dr was lovely and said we definitely need to carry out some tests and he aarrangedfor me to see the urgent eye clinic who said I dont have narrow angles and do not need the iridotomy (where they make drainage holes in the iris) . Anyway sorry for rambling the real issue fformfis that even though I am back on 60mg i have horrendous pounding pressure in my neck , head, chest and even stomach! I am only managing to sleep for an hour at a time before it wakes me pounding like crazy!!!! I think the Dr is letting me home today but I am feeling extremely anxious by how bad I feel, his thinking is that continued steroids will bring it under control. I just don't know what to think !