Good bye and good luck to you all !

[DevonMichael]

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung cancer that has moved into the bones. The NHS cannot cure only seek containment. I now have a major daily drug intake including dexamethasone (which replaces the parked 5mg maintenance prednisolone!) As I say goodbye I want to thank this site and those who have given me such wonderful support. I had GCA in 2016 followed by two PMR flares and have been on prednisolone ever since, all tapering plans failing! I am particularly grateful for the pearls of wisdom from Dorset Lady and PMR Pro who always stepped forward on every question I ever raised! Thank you both and thank you all. Good luck!

[DorsetLady PMRGCAuk volunteer]

So sorry to hear your news…. All my very best wishes to you..and your family. 🌸

[annimills]

Very sad to hear your news. Keep strong....

[Hidden]

Dear DevonMichael,I am so very sorry to hear your news. It's tragic and extremely sad and you are so brave and strong to write those difficult words

I hope you get all the help and support you need throughout this most challenging time in your life.

Please don't leave the forum. It's a great place to meet friends that care.

Sending a big hug and best wishes 🤗

I'm sorry my words seem so lacking.

Thinking of you 🌼 x

[SnazzyD]

Really sorry to hear that. Best wishes to you and yours.

[Bcol]

So sorry to read that news and best wishes to both yourself and your family.

[PMRpro Ambassador]

I'm so sorry to hear that - may I wish you and your family all the very best in your journey ahead, It won't be easy for any of you and I hope you get similar support to here from someone.

Dexamethasone made my husband eat me out of house and home so I hope the house chef is prepared for that!

[phebamom in reply to PMRpro]

Dex also did to me during the first round of chemo. Now it gives me an appetite through the nausea. A fellow patient likened it to the appetite quirks of pregnancy. What I relish on a Tuesday will make me gag on a Wednesday. I've lost ten pounds since 2nd round of chemo. Start last round on Monday. 3 weeks, then one week off, then stem cell transplant. I can't believe I have come this far.

[MrsNails]

Dear Michael, so very sorry to hear your news. I hope your ongoing care will keep you comfortable

The Dexamethasone will certainly help & l hope things are not too tough.

Kind Regards

MrsN

[Maisie1958]

I am so sorry to hear this news. All good wishes to you and your family.

[Bella59]

So sorry to hear your sad news.I wish you and family strength in the coming months as you travel this road.

[HeronNS]

Wishing you and your family comfort on this difficult phase of your life journey. 🌺

[Aglaea]

in my prayers

[Blearyeyed]

So sorry to hear you news.Please stay on HU and in the group though in case you just want to get some general moral support , or private message people for a chat .

It may not be about GCA or PMR but your feelings about your health are still things we would understand and might be able to empathize with you about .

Hugs. Bee

[SheffieldJane]

Thank you for letting us know about you and what has happened. I remember you from years ago. I always liked your name, wishing the best for you. 🌹Pop in now and then, we are all friends here. X

[AntBrad]

I had been wondering how you were getting on. You joined this group a little before me and I have always enjoyed your honest and thoughtful comments about how you have been feeling and the impact on you. I very sadden to read your update and hope that things go as well as they can for you and your family. My thoughts are with you.

[York54]

So sorry to hear this . Sending love and positive thoughts to you and your family x

[Linlang]

keep strong. My thoughts and prayers are with you

[Den73]

Dear DevonMichael, so very sorry to hear your sad news after the battle you have already been fighting.Wishing you the best treatment and care you deserve.

Please feel our love and care for you going forward. X

[Pusph]

So very sorry!x

[2013mayo]

so sorry to hear this, I nursed a very dear friend with this recently. Be strong and hope the treatment goes well, my friend still had another year of life before the end.

🍀🙏🌈

[123-go]

Thinking of you, DevonMichael. Thank you for being part of this forum and for your contributions of encouragement for others.

[Jackoh]

So sorry to hear this Michael. Please still keep in touch if you need to. To write all of that must have been hard and I pray that you will have your pain controlled and find peace at this time. All the very best to you and your family. Xx

[Rox2112]

So very sorry!

[Poshdog]

Do keep in touch, we will miss you. My close cousin (mother's sister married father's brother) is going through the same so rooting for you as well as him xx

[MamaBeagle]

Such sad news, kind of you to think of us and let us know. Safe journey 🙏

[5lupins]

Sending big hugs. Thinking of you and your family. Take care. Jen

[Lassie2]

So sorry to hear your news Michael . I hope the treatment continues to be successful . Best wishes for your journey ahead .

[Alazarin]

wishing you all the very best Michael. I hope your treatment gives you some life quality.

[Raewynne]

Sorry to hear your bad news.I Pray that you and your family will be well supported in the days ahead. Thinking of you.

[Alliekat65]

I'm so sorry. I hope you have love and support. xxcxc

[Summerrental]

Sending thoughts & prayers to you, think positive thoughts.

[Dinahmite]

So very sorry to hear your news. I can only send love and my best wishes for you and your family.

[Biba5]

Such sad news, sending my thoughts from NZ to you and your family . As others have suggested, it may help to stay in the group to chat on occasion. What ever you decide, I wish you peace x

[Sungolfer]

how brave of you to write - I am so sorry to hear your sad news and trust that your treatment will help ease discomfort. My best wishes to you.

[Manjushri]

🙏Prayers to you and all you hold dear .

Know that you are not your body and that your mind is a continuum and may all of us always be connected in love 💗

[Guilluame]

My thoughts and prayers are with you and your loved ones. This forum is amazing, and I am sure will be of help and comfort to you in the days to come, so maybe not goodbye, but just a little pause whilst you get your head around this latest news.

[Hunter134]

So sorry to hear this news.Wishing your family strength during this difficult time! Prayers and hugs to you all.Please keep us posted as how your getting on.We truly care❤️

[Freshairfiend]

wishing you all the best, Michael, for your journey onwards, wherever it may lead. As others have said, please pop back here from time to time, there is a lot of love for you here.

[Tribie]

I am so sorry to hear such sad news, wishing you all the best for your on-going journey. With love and hugs xx

[Bothan]

So sorry to hear your terrible news. I hope you and your family get the support, strength, and love you need to navigate this awful diagnosis.

[Lochy]

Thinking of you and sending love ❤️

[RachelJDH]

Dear DM, very sorry to read your news. What a b******r. Blessings and peace to you and your loved ones. Xxx

[random901]

Thinking of you, DevonMichael. Sending you love and positive thoughts ❤️

[cmToddy]

Love and hugs from us all 🌺🌺

[Broseley]

So sorry to hear this, but thank you for telling us. Wishing you luck on your journey ahead.

[Doraflora]

I’m so very sorry to read your news.

Thank you for updating us all and I send you and your family all my very best wishes.

[Miacaro45]

So sorry to read what you are going through. I wish an easy journey for you. Sending you virtual hugs.

[Hulotsholiday]

It saddens me to read such a brave and difficult post. My warmest thoughts are with you and those close to you.

[herdysheep]

So sorry to read your post. I hope all the support shown on here offers some comfort to you and yours, and that you find similar support elsewhere, but we will still be here for you if you are able to pop back in sometimes.

[Pixix]

Very sad to hear your news, very best wishes to you, keep fighting!

[Bluey-1]

Very sad to hear your news. All the best to you and your family.

[whitefishbay]

Sorry to hear your news. THinking of you and your family. x

[Athas17]

Letting go is never easy. You may be sad but I feel a strength from your post too. May you be blessed with great supportive care!

[cribbager]

All best wishes

[Telian]

So sorry to hear this Michael. Sending the best of wishes to you and your family 🌺

[singingloud]

We are still here for you. You are in my prayers.

[PMRNewcomer]

so so sorry to hear this Michael. Good luck and much love to you xx

[montebello]

I'd like to add my thoughts and prayers to those of the others, and also to thank you for reaching out so we could enter your space as close as humanly possible to share your journey.

[Missus835]

Aw DevonMichael. I'm thinking our group can still support you in some small way. Wish you would stay with us. The road ahead won't be easy, so anyone who's willing to listen, as we are, might be helpful. Positive vibes to you and your fam. ~ Deb

[petros31]

So sad, so brave. Wishing you days of sunshine ahead with the love of your family to keep you strong on your journey.

[Karendeena]

God bless you ❤️❤️❤️

[Vaddy]

So sorry to hear your news.

[Elephants2019]

I was so very sorry to read your latest update. I am happy you had the support from this site…wonderful people here lending their knowledge, time, and support. Hopefully you can find a similar site while you battle your lung cancer. Best wishes to you and your family. 💕

[Topcar]

Such a brave but positive post, bad news is hard to hear and even harder to write about. My thoughts and prayers are with you and yours, and wishing you as comfortable a journey as possible alsoThankyou for giving your valuable time to share your diagnosis with us, again thinking of you 💕

[perceptual63]

Very sorry to hear of your health news and am wishing you are not in much pain where pain meds can help along with dexamethasone.

Stay strong my friend. We are still here for you.

[Dochaz]

Wishing you and your family courage and fortitude to face this new phase of illness. You have been strong so far and sound resolute. Best of luck ☘🌸

[phebamom]

I also have cancer, and am being told by the stem cell specialist where I will be receiving a transplant that I no longer have Giant Cell Arteritis. I decided not to leave the site although I do not post much any more . Like you, my focus has changed. I have Multiple Myeloma, a rare form of it. Undergoing four rounds of chemo now. The particular form of MM I have is wiping out kidneys, so it is kind of a race against time. Really afraid of the stem cell transplant as it will be grueling. Plus, I am no spring chicken. Even if my focus has changed, I still like being a part of this group. Everyone always want to reach out and help others, and I have always appreciated it. It takes so much courage to deal with cancer. I am getting a blood transfusion today, On IV antibiotics from a blood infection. Some days it feels like there is an invisible hand on my back, pushing me forward to get through the day. Other days it feels surreal, like I am standing outside of myself, watching my life play out. Oh, by the way, I am also on Dexamethasone. Dex per dose is 10 times the strength of prednisone, so taking 4mg. of dex is similar to taking 40 of prednisone. I am on 4 chemo drugs and by far, the Dex is the hardest to take.

[DorsetLady PMRGCAuk volunteer in reply to phebamom]

My very best wishes to you…and it does take a lot of courage … 🌸

[PMRpro Ambassador in reply to phebamom]

Wishing you all the best.

[Bella59 in reply to phebamom]

Wishing you well with your treatment.

[Hidden in reply to phebamom]

Dear phebamom💐I hope you are staying strong and your treatment helping you. It is truly heart warming to read your reply to DevonMichael. Thank you 🌼 What a terrible time you are going through.

Sending big hugs x

[MamaBeagle in reply to phebamom]

I'm in awe of your inner strength and courage. Wow🙏

[Blackcat1M in reply to phebamom]

Sorry to hear your news please keep in touch I would be lost without this forum, I find no one judges you on here.

Best wishes 🙏

[Southmead]

What can one say, everyone who replied, the many reading your post, including me, are all saddened by your words. I am reminded of a musician Warren Zevon, who also had terminal cancer. On a late night talk show, the host David Lettermen. He asked WZ to share a few words with to the millions watching the show. I leaned forward wondering what he would say. He simply said “ Enjoy every sandwich” At first I thought what a strange thing to say. Then I saw the profundity of his words. It goes for all of us, enjoy every simple moment, enjoy that sandwich.

[Sandradsn]

Thinking of you Michael and sending a big hug xx

[Oh-my]

So sorry to hear your sad news DevonMichael. Good luck and best wishes to you and your loved ones.

[nickmits]

Im very sorry to hear about your cancer. I wish you all the best in your journey forward.

[Bennijax]

a wonderful salute to our Healthunlocked group, and your brave admission of current health. My strongest, sincerest wishes for you

[AshPen9]

God bless.

[Macas]

So sorry to hear your sad new. I wish you and your family all the very best.

[bussell]

Thinking of you and yours, dear Devon Michael. Brave and thoughtful of you to tell us this.

[PMRGCA19]

Thanks DevonMichael for being so honest with us. May God keep you close as you navigate your way through this journey.

[PurpleDanza]

So very sorry to hear this news. My heart goes out to you and your family and friends.

[Poshcards]

💚🙏 xx

[tempusfugi]

Dear DevonMichael, I had to add to everyone's wishes to you, even though I haven't 'met' you before. It's all been said before but I wanted to let you know that I'm thinking of you at this time. Thank you for your brave message. Tempus

[Leafsong66]

May you face this next challenge with the courage and determination your journey so far has taught you. Thank you for being part of this forum. Is there a new forum for you to get support from? Best regards from Australia x

[JanetRosslyn]

Sending love and hugs x x x

[Blackcat1M]

so sorry to hear that sad news my thoughts are with you and your family 🙏❤️

[Ridge]

Do you have to leave us DevonMichael? You have such experience and we would do all we can to support you. Courage our friend. Thinking of you.

[Golf-1]

Take care, hopefully you will find the strength to cope with your ongoing problems

[MojitoQueen]

Sometimes there are just no words. 😔💕

[Puddlewatcher]

I love you brotherman, and apologize that you must deal with this!

[Purple-Owl]

Thank you for so courageously letting us know your unwelcome news. Do come back if you feel in need of support from so many here who really I’m sure understand what you must be feeling.

[Snowyplover]

I am so sorry that life's journey has brought you to this point. Be

strengthened by those who surround you and absolutely love you to pieces.

[Spinbikeoldman]

so sorry to hear news like this but put into perspective the suffering that goes on. Only my second message on hu but an avid reader