I have learned a lot from you all about PMR and I am grateful to everyone who has welcomed me and posted and sent messages.I have taken the decision to leave the forum. Nothing has happened or gone wrong, but I am getting obsessed, it is what I do due to my ASD. I realise what is happening, my husband has noticed.
I want to thank you all and wish you all well on your journeys with PMR, and thank you all for making me aware of the illness. Jane.
🌸 You know where we are should you need us again..good luck.
Sorry to see you go but understand.💕
Completely understand. Good luck!
I understand and you know that we were concerned about you too. What you have learned so far should really help you manage your condition.
Have a wonderful day today with your husband, daughter and baby. 🌻
Thank you all. I will not delete my account yet, as suggested by PMRpro.I will let you know how I get on as you have all been so kind. Bye for now 🙋
0I'm so happy to hear that you feel you have gained knowledge which will help you deal with your PMR. Everybody is always here and wish you the very best. Feel free to drop in anytime. The best of luck in your journey.💕
All the very best, LittleJane! Don't forget us completely!
Hope all goes well LittleJane, you don't have to totally leave, keep the account and just drop in if and when you ever feel the need. All the best to you and the family.
Perfectly understandable, you need to take care of your whole self. Go well💐
Hi,
Sorry that you’re leaving, but you know that we will be here to help whenever you need us.
Good luck.
Thank you, we have had a lovely day with our daughter and grandson.I had a message this morning from a supportive GP endorsing the slow taper I have devised using the examples on this site
All is well.
You take great care of yourself,you are worth it!Good luck in your PMR journey,and remember,we are all here for you when and if you need us.Hugs.xx💐
I need you all, I'm up and down like a yo-yo today. Don't know which way is up 🫨 I just need to get back home 🚗
Hi Little Jane,NICE DEEP BREATH eh?Of course you need us,we ALL need this forum.You seem to be going through hell,wish I could give you a comforting hug and tell you it is all going to be ok,because IT WILL!You are dealing with a lot .I really don’t think you can do this on your own.Even with with all of us helping you along,you must see if you can get some support.This fourum is great but you need to be face to face with support.Do you live in an area where the forum have meetings?That would be great for you ,being with people that are in the same boat where you can share others experiences and they can share yours?Have a look at the website and see if any of the meeting up groups are near you.If not PLEASE see your doctor,really hate to think of you going through all of this on your own.We all care ok? Sending you a hug,and a big bunch of flowers to cheer you up.,Sorry they aren’t real!xxxx💐💐💐
You are lovely, I'm sure I'll be ok when I'm back home and near family. When I had a meltdown back in April when hubby was away, our eldest son came round, made tea and sat with me for an hour then went back to work (he works from home).I just feel cut off and isolated here which is a shame for hubby, doing things on his own.
Angelsmummy I don't 'do' support groups as such because of my ASD, I just wouldn't cope. I have a lovely neighbour, a hospital chaplain. She is very supportive if I need someone. Also my brother in law is very good as he has had health issues a lot. He is like my own brother, I've known him since he was 10.
I really appreciate your concern, you have no idea x
Lovely I ain’t!🤣Sad that you cannot do a support group,I don’t know anything about ASD I am afraid,but must be so sad not to be able to mix freely.Can I ask,is it the fear of the PMR that is getting to you,or the Pred?I really should have re read your posts so I could be more in tune with what is happening,so forgive my ignorance.If it is the PMR,it is manageable,as countless people on here will tell you,ask PMRpro.If it is the Pred,it is your FRIEND as we all know now on this forum.I lost my left eye nearly 2 years ago to GCA,I was a MESS,I don’t mind telling you.Felt quite suicidal at times,wondering how on earth I was going to cope with my husband with dementia,all our animals,very large plot of land plus my own coming to terms with my loss of vision.,losing my independence but do you know what?I am coming to terms with it,I have to.It must be so much harder for you with your ASD,but you WILL get there.Be kind to yourself,don’t try and run before you can walk.Find someone to lean on,share this burden you are carrying.Find something that you want to do and have never got round to doing.It will give you something to focus on,and maybe take your mind off everything you are feeling at present.Sending you support and healing thoughts.xx Chin up Little Jane!xx🌼🌼🌼😜
I'll be ok when I get home, I know I will. I'm grumpy and irritable out of my routine and familiar environment, even though we've stayed here before. I just feel a long way from everything familiar and I have this diagnosis and medications to sort out in my head. I'm a bit scared of the meds and potential for side effects and possibly more meds for bone protection. I already take thyroxine, iron and an SSRI.I know the stages of grief, I worked in the funeral service. I am not at the level of acceptance yet. I'm still processing my loss. Thanks for listening.
Try not be scared of the meds.We take them for a reason,nobody wants to,but we HAVE to.Before I got GCA/PMR,the most I ever took was paracetamol.So this was all scary for me too.Try and eat nice and healthily,plenty of calcium,and who knows,you might not need heavy bone meds,I take I CaL D3,quite nice tasting too!Still,that is between you and your doc who I am sure will do what is best for you.You just do what is best for you Little Jane, and hopefully soon you will come to terms with your loss.Have a safe journey home ,and be back with your familiar thingsxx🌼😜👍
🤗Thanks, good night x
Quite understand. Perhaps it would be a good idea to see your doctor & explain that you’re not coping with it all, & get some help? Or join a PMR support group as you need more help.
Thanks Pixix, I did join a PMR support group, this one 😉 Then I got all silly and obsessed and thought I could do it on my own. After a chat with PMRpro I realise I can't so here I am again 🙄
Thank you for your replies
Thank you for support!!!❤️❤️
Thank you All
Thank you all so much…….from Guilty
Thank you
