When should I start the 'Dead Slow' taper? - PMRGCAuk

PMRGCAuk

20,319 members38,053 posts

When should I start the 'Dead Slow' taper?

landyjhm profile image
19 Replies

Having had a disastrous taper last year, I am determined not to repeat it.

I am now down to 7.5mg of Pred, having reduced by 0.5mg every three weeks since I was down to 10mg. At what point would you suggest that I move on to the dead slow taper?

Many thanks, Jonathan.

Written by
landyjhm profile image
landyjhm
To view profiles and participate in discussions please or .
19 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Sounds as if now would be a good time….adrenals will be struggling a bit to be nudged back into life. … so they need a slow taper, as will your PMR…

But a slow taper can be introduced at any dose… and in hindsight it probably would have made your disastrous year less likely had you commenced it at 10mg.

Good luck from now on…

landyjhm profile image
landyjhm in reply to DorsetLady

Thank you, much appreciated.

PMRpro profile image
PMRproAmbassador

You can use it at any dose. The originator of the idea used it below 5mg but when I expanded the concept it was aimed at patients on enteric coated pred who could only taper in 2,5mg steps - no 1mg tablets then - and even patients who were struggling at doses above 20mg. There is no fixed place to start it, The earlier you start it, the less likely you are to run into trouble.

landyjhm profile image
landyjhm in reply to PMRpro

Thank you, I shall start it and my next reduction. Would you advise 0.5mg reductions or 1mg?

PMRpro profile image
PMRproAmbassador in reply to landyjhm

As small as possible! The basic rule is approx. 10% of the current dose. That is 1mg at 10 - by 7mg 1mg is 14%, by 5mg 20% so 1/2mg at a time is always better.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

Know you mean 1/2mg rather than 1.2mg - might confuse newbie.😊

PMRpro profile image
PMRproAmbassador in reply to DorsetLady

It's my Italian keyboard markings ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

I knew what you meant, and I’m sure most would …. 😉

PMRpro profile image
PMRproAmbassador in reply to DorsetLady

Drives me up the wall! Usually I notice but it happens a lot.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

Yes you very often have a semi colon in a word when you mean an apostrophe… and that doesn’t really matter, but as you say annoying..

alangg profile image
alangg

I used a DSNS tapering plan every time I reduced the dose and never more than a 10% reduction. Each plan took just over 4 weeks and then I stayed at least a week on the new dose, usually two before starting to taper again. It worked for me!

landyjhm profile image
landyjhm in reply to alangg

Thank you alangg, that's really helpful.

Bedwell profile image
Bedwell in reply to alangg

I tried to reduce from 2 mgs.. to 1.5 ..having been on 2 for a month.. and I had an awful day! Couldn’t function at all. But I had a cold!!! My cranial osteopath said one shouldn’t reduce if you have a cold? Haven’t heard that! Back on 2 .. for how long!?!?

landyjhm profile image
landyjhm in reply to Bedwell

Good advice, thank you!

PMRpro profile image
PMRproAmbassador in reply to Bedwell

You shouldn't try to reduce if you are at all unwell. We do say it lots on the forum!

PMRnewbie2017 profile image
PMRnewbie2017 in reply to Bedwell

Stay on 2mg until you have fully recovered and feel properly well again. Some of these cold viruses are hanging around for a while.

Bedwell profile image
Bedwell in reply to PMRnewbie2017

thanjs yes. It’s been over a week.. seems to come and go. Better at night funnily enough. Homeopath just suggested a remedy so will see how I go. Thanks again!

MillMoor profile image
MillMoor

My slow taper started about 7 years ago. Have GCA and PMR.Had two major flares following consults orders. Finding this site changed everything. Now down to 4mg with no problems from 40mg. Only do half mg at a time.

Good luck with it.

landyjhm profile image
landyjhm in reply to MillMoor

Thank you Millmoor.

You may also like...

Dead slow, nearly stop taper

I'm following this super slow tapering, but have a (probably stupid) question. When you leave 6 days

Should I Start The Scheduled Taper

As you may remember, my GP upped my Pred from 14.5 to 20mg. Tapering by 2.5mg monthly. Supposed to...

How soon can I start the slow taper?

recommend procedures that have been in place for years. Any thoughts or suggestions would be...

Using the dead slow method to taper from 2mg to 1 and then to O

using the dead slow method of tapering, for I have had a great deal of difficulty tapering at this...

When does taper start

0-10) ESR 10. (Range 1-12) Down from 20 and 37 respectively on 7th Jan. I will have been on 15mg...