Taper Complete…: I have stopped taking prednisone... - PMRGCAuk

PMRGCAuk

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Taper Complete…

LabradorH profile image
14 Replies

I have stopped taking prednisone after 18 months of use and slowly reducing the dose. It has been just 2 weeks, so I know my PMR misadventure will still be ongoing. I am very grateful for the support and insight that I have received via this online group.

I have been doing okay in terms of pain. Fatigue has been an issue this past month but it has been manageable. If I continue like this and feel reasonably well in a month or six weeks, I will get a blood test to check inflammation.

Thanks very much; best wishes in 2024.

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LabradorH profile image
LabradorH
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14 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good luck, and fingers crossed for future.

LabradorH profile image
LabradorH in reply toDorsetLady

Thanks for wishing me good luck. I appreciate it. And I have found the tapering schedules that you sent me last year to be very helpful.

Morning light over river..
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toLabradorH

Good… lovely photo - near you ?

LabradorH profile image
LabradorH in reply toDorsetLady

True confession - I didn’t take the photo, just “grabbed” it. But it does look just like the shoreline here of the river where I walk. Unusually for this time of year here the water is still partly open, it’s still not very cold.

PMRpro profile image
PMRproAmbassador

Good luck - but after such a short episode, be very aware that it may just be at a very low level of activity and the dripping tap may still be dripping. Be aware and not in denial if it sills up and overflows because the sooner you react, the less of a problem you are likely to have.

LabradorH profile image
LabradorH in reply toPMRpro

Thanks for wishing me good luck. Sounds like I will need it. I have 5mg doses of prednisone ready and I plan to continue taking it easy, but use the medication if needed. It seems like it has been a long episode but I guess it has been relatively short.

PMRpro profile image
PMRproAmbassador in reply toLabradorH

Excellent - you may be fine and I hope you are, But being prepared is a good start if it does go pear-shaped! Love the picture!

LabradorH profile image
LabradorH in reply toPMRpro

A photo to share with you - I did take this one. Thanks for your consistent realistic commentary for us.

Village.
PMRpro profile image
PMRproAmbassador in reply toLabradorH

Thank you - I always think there is no point hiding the truth. What a lovely little display - what was it?

LabradorH profile image
LabradorH in reply toPMRpro

It is just a windowsill in our house - an LED - lit ‘village’ made from painted wood scraps - made by an acquaintance. Our little grandsons enjoy playing with it, and switching on the lights after dark..

PMRpro profile image
PMRproAmbassador in reply toLabradorH

It is lovely!

Bedwell profile image
Bedwell

congrats on getting there.! It’s encouraging to hear. I’m about to reduce another 0.5 mgs to 2… roughly half a mg a month … so sort of hoping by the summer and my 86th birthday! Perhaps?!

My therapist says.. “Question your expectations” .. it’s a good mantra!!!

LabradorH profile image
LabradorH in reply toBedwell

Thanks. Best wishes with gradually reducing, but questioning your expectations. That is a sensible mantra.

Bedwell profile image
Bedwell in reply toLabradorH

Yes I find it so.. of myself .. and others!!!!

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