I have stopped taking prednisone after 18 months of use and slowly reducing the dose. It has been just 2 weeks, so I know my PMR misadventure will still be ongoing. I am very grateful for the support and insight that I have received via this online group.
I have been doing okay in terms of pain. Fatigue has been an issue this past month but it has been manageable. If I continue like this and feel reasonably well in a month or six weeks, I will get a blood test to check inflammation.
Thanks very much; best wishes in 2024.
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LabradorH
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True confession - I didn’t take the photo, just “grabbed” it. But it does look just like the shoreline here of the river where I walk. Unusually for this time of year here the water is still partly open, it’s still not very cold.
Good luck - but after such a short episode, be very aware that it may just be at a very low level of activity and the dripping tap may still be dripping. Be aware and not in denial if it sills up and overflows because the sooner you react, the less of a problem you are likely to have.
Thanks for wishing me good luck. Sounds like I will need it. I have 5mg doses of prednisone ready and I plan to continue taking it easy, but use the medication if needed. It seems like it has been a long episode but I guess it has been relatively short.
It is just a windowsill in our house - an LED - lit ‘village’ made from painted wood scraps - made by an acquaintance. Our little grandsons enjoy playing with it, and switching on the lights after dark..
congrats on getting there.! It’s encouraging to hear. I’m about to reduce another 0.5 mgs to 2… roughly half a mg a month … so sort of hoping by the summer and my 86th birthday! Perhaps?!
My therapist says.. “Question your expectations” .. it’s a good mantra!!!
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