rubbery and jello feeling legs: Hi all for the last... - PMRGCAuk

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rubbery and jello feeling legs

Skier321 profile image
7 Replies

Hi all for the last two months my legs have felt rubbery and like jello. They are strong enough no issue there as I can still do all my physical activities. However they feel weak. I am now down to 3 mg of prednisone and have had pmr for 2.5 years. Have been reducing since my last flare, at .5 mgs per 5 weeks with the old and new dose alternating for a week at the beginning.

Merry Christmas and a Healthy and Happy New Year to all.

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Skier321
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7 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Might be adrenals stuttering -they affect you a lot more than the obvious -

healthunlocked.com/pmrgcauk...

-or steroid myopathy -

Skier321 profile image
Skier321 in reply toDorsetLady

Thank you very much for this information

Enjoy the holiday season

PMRpro profile image
PMRproAmbassador

I'd be inclined to blame lazy adrenal function - slow down your taper a bit and give them a chance to catch up.

Skier321 profile image
Skier321 in reply toPMRpro

Thank PMRPro much appreciated. Enjoy the holidays with family and friends

Gimme profile image
Gimme

The weak and wobbly legs is something that I am very familiar with. I have always associated it with the PMR and it went on for months, then spontaneously resolved at the same time as the awful fatigue. The fatigue was a big issue for me before I started taking pred. Mine could be due to the adrenals, as other have mentioned, but as I now get the same relief from 5 mg pred as I originally got from 15 mg, I am hopeful that it resolved because my PMR is improving. Though it seems that most of us with PMR go through this phase at some stage or another.

Viveka profile image
Viveka

Mine can be like that. Not all the time but occasionally. You know they are strong enough to do the work but they feel weak. I put it down to adrenals - was happening around 3 and below.

Skier321 profile image
Skier321

thanks you for your thoughts

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