It's almost 2 weeks since I fell and 5 since Mark's op. He's doing really well.
I have not been doing so well. The massive bruise is disappearing, the scab over the graze is good but still a bit stingy.
I am not getting going until 2 ish each day spending the mornings cold, tired, hungry and lacking the energy I need to cook. Someone suggests I get my thyroid checked.
Today I have finally made the Sweet Pot and Lentil bake I have been meaning to make for 10 days. It was hard work and shouldn't have been, it's an easy dish.
After my last post I belatedly added in some extra pred (always temporary in my mind, I am wanting to please my rheumy and Dr!). I added in 3mg (making my dose 13mg for 5 days and will drop to extra 2mgs tomorrow for 3 days (so far). I have found extra stash and will consider what next to do.
My internal critic is always commenting on how many tablets I am taking and questioning yet another ache or pain. I know where this stems from BUT it's so tiring and frustrating as it is a powerful introject.
So, I am here hoping for and wanting some positive support and suggestions. Some reassurance that yes, I am ill, I am having a flare.
Thank you.
Photo of Thea, 6.5 going on 12!
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IdasMum
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Sorry but “wanting to please Rheumy and GP” is not the most important thing… controlling your illness is.. and as for your “internal critic” send her away for a winter holiday!
Personal opinion, if you have enough Pred, I’d stay on 13mg for 7-10 days.. if today’s/yesterday’s efforts are anything to go by sounds as if you need to.
..and yes you are having a flare, and yes you are ill, so plenty of TLC - whether it’s self administered or by Mark now he’s improving…
Gosh! I can remember when Thea was born. She has been beautiful all her life. Did Granny get the polar bear? 🧑🏻🎄. My (daughter) mummy’s smile is getting a bit fixed at my offerings.
Some homoeopathic Arnica may help your recovery along.
An under-active thyroid function would make you, low, cold, unmotivated with dry skin and weight gain. Get it checked out.
Does your extra Pred really help? Or is it something to do because you feel so awful?
So sorry that you are going through a bad patch. DorsetLady’s advice is always sound. Try a little walk in the fresh air. I tend to underestimate the simple remedies.
Our store cupboard go to is tomato lentils ( tinned tomatoes, stock, garlic and onions) served with lightly fried halloumi. Easy peasy.
Thea was born around 6 months after my official diagnosis. The Polar bear has a name that OH has used for much of his life and she knows him as Pip, I don't think it's going to be a present for anyone 😅
Does your extra Pred really help? Or is it something to do because you feel so awful?
Interesting question, I am not sure they are helping but it's a go to when I am struggling. I will pay some attention to the increase and measure it efficacy (somehow).
I have to say I was relieved to read your post. I too have an internal voice in my head with every pred tablet I take. It’s my Rhuemmy too. I had a phone conversation with her and she was very disapproving of how much pred I was taking. Yes, 30mg is a high dose but it took that much to control the pain. She wanted me to reduce every two weeks till I got to 10mg, then slower.
But the way she’s made me feel is awful I can’t get her out of my head. It really annoys me and I think I’m going to ask to transfer my care to another hospital. Professor Rod Hughes’s hospital is not far and I’m going to see if it’s possible to transfer to his clinic.
To sum it up I feel that she’s given you medication to make your life more bearable then is annoyed that your taking them!
On the positive side I have a supportive GP.
All the best in controlling your flare and let’s work hard at getting the Rhuemmy out of our head
Can only echo exactly what DL said - from Thea to the end!
The rheumy is supposed to care for you, the patient in front of them, not some image in a textbook that, in my experience, bears no relationship to real life. Some of them seem to require a lot of encouragement to understand that!
The number of tablets is relatively immaterial - they are there to manage various conditions and without them you wouldn't be as well as you can be, Sometimes combining different drugs works better - but it looks as if you should rattle.
And prevention is often far preferable to cure. Don;t wait until you feel utterly rubbish -intervene sooner.
You question was good, thank you. I can report that I think they're helping. Despite a disturbed night (OH not sleeping well and restless) I am feeling 'normal' today. Have already been doing those small tidying tasks that you can't get to when you're fatigued. There is some washing to fold, normally left for Mark, which I will do after my 2nd coffee.
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