I posted this about 6 weeks ago.....
"I have done so well...diagnosed with GCA in April 2015 and have decreased from 50 mg to 5 mg in a very short time with no relapses. However, 10 days into my decrease to 5 mg (Christmas Day) I had a slight headache and my hair "hurt" neither of which caused me to take any pain medication. This went on for three days at which point I took an extra 1 mg of prednisolone and voila, 24 hours later my niggles were gone. I have also had terrible night sweats and a very stuffy nose especially at nighttime. Does this sound familiar to anyone? By way of background, my first symptoms of GCA were a headache which just wouldn't go away, a sore jaw, sore scalp, night sweats and a swollen artery on the side of my temple"....
As the slightly sore head went away, I reduced to 4 mg 4 weeks ago. Was doing fine or so I thought and then I noticed for about 4 consecutive days my jaw was very stiff in the mornings and this got a little better as the day went on after taking my meds. On the fifth day, it was aching and conveniently I had a doctor's appointment and told him. He took my blood and my ESR was up to 16 nothing like April 2015 when it was 44. I started back on 15 mg and within 24 hours or so, jaw is fine, no more night sweats and over heating and my sinus is also clear.
All this leads me to conclude that the night sweats and sinus problems were likely the first sign of a flare and I will now recognise this in future and not wait for a sore jaw or even worse, a headache which in my case was the final symptom last year and the one which caused me to seek medical help.
I feel I coped with the decreases until I got to 6 mg so here we go again and at a much slower pace.
Now if we could just do something about this dreadful Scottish weather as I feel sure a little sun would help!