HI, I was diagnosed with PMR over a year ago and have been doing very well with very slow reductions of pred. I have felt very well in myself.
I now have a pain in my back. Waist height, right hand side. A niggle for a few days, then it became much worse. A deep dull constant ache, not sharp. It was worse on bending, twisting or reaching. I'd wondered if it was a kidney infection.
After asking if the pain was related to my PMR, which I discounted on the grounds that it is very much one-sided, a doctor at the local health centre (not the one who finally diagnosed my PMR) has diagnosed Shingles on the basis that I had a minute spot at the site of my pain. She prescribed amyltryptilene to give me a good nights sleep, told me that anti-virals had side effects so didn't prescribe them, and told me to take paracetamol or ibuprophen for the pain. She said Shingles affected the nerves that run down the spine, but my pain isn't anywhwere near my spine!
The spot was not inflamed as in phots on the net. I'm pretty well certain that it it was a midge bite. She dismissed with "Not at this time of year." We have had some very warm weather and am sure I have seen them. (We are out with the dogs daily and flying insects home in on me!)
I took 400mg ibroprophen which has reduced the pain to easily bearable. A second dose didn't make much difference. I'm not having much trouble sleeping though the pain does seem worse in the night/early morning. The anti-depressants have stayed in the packet.
The spot has not crusted over and formed a scab, it has just faded and is only visible because we know where it is but the pain has not gone with it.
Is this linked to my PMR after all? I am about to start reduction to 4mg. (Doing DSNS without problem so far) or something else? It doesn't feel like nerve pain, it feels as if something is inflamed.
Does anyone have experience of Shingles with PMR. The doctor was obviously expecting me to have a great deal of pain and I haven't. Where is shingles pain sited?
Does it disappear with the rash? What sort of pain? Any ideas?