Adrenals or that dripping tap?

[LemonZest11]

Hello Friends, it’s me again. I have been thinking about asking you all but then I come good and think no need, and then I change and so here I am. I have been off pred now for 7 weeks, still having 3 weekly TCZ. My taper was extremely slow, right down to .25mg reductions. I have not had a return of PMR/LVV type pain, but it feels as though every little thing that may have been masked by pred for the last 4+ years has come to the surface, as though my aging has been hidden under the comfort blanket of prednisone, which has now been lifted. My knees (torn meniscus), one wrist/thumb and sometimes lower back have been tender. All are relieved with 200mg ibuprofen, so I have not been too concerned. I was having bad headaches, but these seem to have subsided, but the main thing is fatigue or lack of energy. It’s not debilitating and if I press on then I’m fine, but if I lie down, then my body really relaxes into a rest. I guess I just feel weakened. What do you think … adrenals? 🤞

[DorsetLady PMRGCAuk volunteer]

Probably adrenals, well known fact they can take anything between 6 months to a year to be back to normal function….and other aches and pains [as you have identified] are probably due to real life without Pred. But just monitor the headaches…and obviously if they continue get them checked out.

[LemonZest11 in reply to DorsetLady]

Thanks DL, I will. Adrenals are strange, I thought mine must be OK, but seems even the tiniest bit of pred can make a difference.

[DorsetLady PMRGCAuk volunteer in reply to LemonZest11]

Yep - right on both counts…😊

[PMRpro Ambassador]

And I agree with my friend ...

[LemonZest11 in reply to PMRpro]

You two should write a book!

[Louisa1840]

Actually that's not a bad idea! How about it DL & PRO?

[DorsetLady PMRGCAuk volunteer in reply to Louisa1840]

We’ve already got the T-shirts and the film rights sorted….📽️📹🤣😂

[Louisa1840 in reply to DorsetLady]

OOH - can I be the star⭐ please as I'm an actor?

[DorsetLady PMRGCAuk volunteer in reply to Louisa1840]

Tough choice - with a double act like us! 🤔…

[Louisa1840 in reply to DorsetLady]

Hmm - don't think my ⭐would shine nearly brightly enough!!!

[LemonZest11 in reply to DorsetLady]

Since I taught film production, I can direct, that's if you'll take direction!! 🎬

[DorsetLady PMRGCAuk volunteer in reply to LemonZest11]

... that's if you'll take direction!

What do you think? Something about herding cats springs to mind.....and that's being kind to cats...😲😂🤣

[LemonZest11 in reply to DorsetLady]

I've directed worse 😅🤣😂

[DorsetLady PMRGCAuk volunteer in reply to LemonZest11]

Well, at least we don't have egos I guess....😇

[PMRpro Ambassador in reply to LemonZest11]

You think?