Hi everyone. I was diagnosed with PMR in the summer of 2019. I resisted Pred for as long as I could but then had to weigh up the uncertainty of potential GCA. So I began a 20mg daily dose of Pred. IT has now been 19 months and I have been weaning off, 1mg monthly. Today I am at 1mg daily. My inflammation markers are all good and back to normal. However, I feel like I've been hit by a bus. Honestly, I've been feeling this way now for months and, now and again, I might have an okay day but wholly I am completely shattered after 9-10 hrs sleep each night, soreness in my middle back like I've never known before, muscle and joint pains that are just as crippling as the PMR. My eyes are constantly red. Everything hurts!
Today I've called the doctor. I think this must be Adrenal Insufficiency. I wondered if any of you might be familiar with this and/or could let me know of what to expect treatment-wise?
Love and kindness to you all