NHS and Patient Access App: You may remember that I... - PMRGCAuk

PMRGCAuk

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NHS and Patient Access App

Bcol profile image
Bcol
18 Replies

You may remember that I posted a few weeks/months ago about all my medical information disappearing from the above apps. I've done a bit of chasing and in spite of everything I have been told they suddenly re-appeared this morning ( suspect its been a surgery not an NHS problem, but may be mistaken). Also they seemed to have been edited.

Anyway on looking through them its quite interesting. in the Problems section

Current Problems - Degeneration of Lumbar intervertebral disc etc Jan 2023 (my MRI scan)

Nov 2022 - pain in lower limb, April 2022 OAQ in knee. No mention of PMR

Past significant - absolutely nothing, no mention of OA since the 1980's

Past minor - Jan 2023, Acute back pain with sciatica. ( again reason for MRI, which didn't read well)

And that's it for problems. Nothing about anything else that has happened over the years.

Medication - I have no Acute medication and a list of everything I take on repeat.

Most peculiar.

My OH has Fibromyalgia and when she asked, a couple of weeks ago, for a list of her illnesses for a form she had to fill in Fibro wasn't there. On ringing the docs they said, no we didn't put it on as you manage it so well!!!!!!!!!!!!!!!

I sometimes wonder.

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Bcol profile image
Bcol
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18 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Heaven help us -what a shambles... good job you know what you've got!

Bcol profile image
Bcol in reply toDorsetLady

Just looked through everything, there is nothing there before 2022. I'll give them a ring this afternoon, perhaps that is the new norm/policy

Nextoneplease profile image
Nextoneplease in reply toBcol

You’re very kind Bcol 😊 I don’t think I’d be feeling that forgiving 🤷‍♀️

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

That may be so, but you still lived before then - and may have had problems/procedures which are directly relevant to the status of your current health.

Bcol profile image
Bcol in reply toDorsetLady

Nah, come on, what on earth would be relevant! Covid, my replacement knee, fused bones and screws in my foot, I guess I could go on!!!!!!!!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

Couldn't we all - absolutely bonkers, and no use to man nor beast!

Bcol profile image
Bcol in reply toDorsetLady

I'll see what I get fobbed off with this afternoon. OH had to have a telephone appt with a doc to get her Fibro reinstated. It's an absolute joke.

MrsNails profile image
MrsNails

🤦🏻

PMRpro profile image
PMRproAmbassador

I don't have a past medical history - lived in Germany for 10 years and been here for well over 10 years and nothing joins up!

Bcol profile image
Bcol in reply toPMRpro

Guess I'm joining the "no history" club.

Bcol profile image
Bcol

Fobbed off with its an NHS Digital problem with an upgrade due in May. In my humble opinion that is a load of old piffle.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

Piffle at its best ! But then they seem to have plenty of practice…..

Bcol profile image
Bcol in reply toDorsetLady

Well I suppose its good news really, I now know there was nothing the matter with me before Jan 2022. Anything I thought I had was obviously an over active imagination!!!!!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

That’s one way of looking at it - or perhaps its all part of a cunning plan Baldrick!

Bcol profile image
Bcol in reply toDorsetLady

Indeed. The big question of course is who's cunning plan? If I remember rightly one of them (Blackadders) was an MP so I can happily blame that one!!!

Kendrew profile image
Kendrew

What an absolute car crash!

Bcol profile image
Bcol in reply toKendrew

See DL answer.

Pixix profile image
Pixix

Moving house was our best one…different area…different computer system! It was like being born again!! Good luck, S x

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