off pred…. Update: good morning all. I have now... - PMRGCAuk

PMRGCAuk

21,320 members40,427 posts

off pred…. Update

Alazarin profile image
8 Replies

good morning all.

I have now been ‘off’ pred for 6 weeks. It’s been a bumpy ride. I started to have pain in my knees and thighs, which made walking and exercise difficult( never had this before). I took pain killers and reminded myself that the HPA triangle may not be up to speed. I started hydrotherapy, which has been fantastic , I love it. I have to constantly remind myself that it’s a slow journey to recover.

but, my energy levels are much better, no hot sweats, sleeping well.

pain levels are very up and down one day agony, next day pain free.

A friend suggested I work the adrenal and pituitary reflex points which can be done on hands and feet. I have been doing this daily, and my pain has diminished hugely. I am amazed, but being a pragmatist I am questioning. So am keeping a record of what activities I do and my body’s reaction, plus a note of pain relief and diet etc.

I just want to thank all wise beings on this forum, for the support over the years.

I’ll check in again with progress.

best wishes to all, keep going.

Written by
Alazarin profile image
Alazarin
To view profiles and participate in discussions please or .
Read more about...
8 Replies
SheffieldJane profile image
SheffieldJane

This all sounds very sensible. We’ll be rooting for you. It could be Osteoarthritis emerging from hibernation?

Alazarin profile image
Alazarin in reply toSheffieldJane

yes Jane, am also thinking that. My back problem has woken up too. Steroids cover up so much

PMRpro profile image
PMRproAmbassador

Do write us a post about the adrenal and pituitary reflex points ...

I started aquafit at the recommendation of my physio - really useful but getting dressed afterwards is the worst bit! After a shower at home I just wrap myself in a big towel and sit in front of the computer to drip dry :)

Alazarin profile image
Alazarin in reply toPMRpro

I agree, and I have to award myself a ‘wagon wheel ‘, ( conditioning from childhood swimming)

Alazarin profile image
Alazarin

I will see if I can find a reference for the reflex points

jinasc profile image
jinasc in reply toAlazarin

Good, perhaps your friend can do a drawing?

Theziggy profile image
Theziggy

duckduckgo.com/?q=adrenal+a...

Alazarin profile image
Alazarin in reply toTheziggy

there the ones Ziggy, thank you. Although they do seem to vary in diagrams. I think the adrenal point is closer in to the palm. Maybe everyone is different.

But it’s free😀

Not what you're looking for?

You may also like...

weaning off Pred

Hi I’m being weaned off my steroids , by direction of the rheumatologist. I was on 45mg a day...

Bilateral rotary cuff in shoulders after coming off pred....

After 3.5 years tapering pred I have been left with bilateral rotary cuff which is excruciating. I...
Seriola profile image

Ordering Pred.

Is it normal to have to phone the surgery every month to order my Pred. When I first started a year...

Nearly 12mths on Pred - update

I started with the pain in January 22 and luckily I was diagnosed with PMR in February after loads...
Middleton22 profile image

PMR Update

Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So...
Sungolfer profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.