Been told threes ago I have pmr

[314B82m210c]

I was told three weeks ago I at pmt and wss put on 15mg Ped

I don’t have a headache just a pain in my cheek and ear going up to my head .

Does anyone get this. I don’t know anything about Pmr that’s why I joined this group it’s very interesting and I’m sure from browsing I do learn quite a lot.

[DorsetLady PMRGCAuk volunteer]

Hi and welcome,

Maybe have a look through this for starters -

healthunlocked.com/pmrgcauk...

and then this more specifically PMR - if you havent found already -healthunlocked.com/pmrgcauk...

Probably need to follow up on ear - sometimes a sign of GCA, but could also be TMD/TMJ

- webmd.com/oral-health/guide...

Do you have difficulty chewing - that could be GCA? so further investigation required although headaches may present in some cases of PMR as well...

Please get it checked out.

[PMRpro Ambassador]

Hi and welcome.

Can you tell us a bit more? Is the pain all the time? Does anything make it worse - like chewing or talking for a while?

[314B82m210c in reply to PMRpro]

Hello

The pain is mainly when I really tired around mid afternoon then most of the night

It does hard to chew but even when I can’t anymore I have to be very careful when I sollow The gets stuck.

It is a lot better now orbit. Still got pain in my head .

Thank you for your message

[LIVEORDIEHEREIAM]

314B82m210c, if you have not run across a mention of GCA, what you said you are experiencing is indicative of that, which is a medical emergency! One almost certain way to tell is to chew a piece of gum at the rate of one chew per second (kind of slow). If the pain and "tiredness" in your jaw muscles becomes much worse or intolerable, call for ambulance. You can be permanently blinded in one or both eyes.

Some here would say that if you have a supply of prednisone, just go up to 60 mg. and stay there until officially diagnosed. Your eyes can be damaged without warning. We unfortunately have members on the forum who have had it happen that way.

While going up to 60 mg should lower the danger of loosing your sight, you need a proper diagnosis because some people who go to ER are given intravenous pred at a level much higher, based on test results.

Of all the people here, please know that the REAL expert is PMRPro. When she speaks, listen!

Good luck!

NOTE ADDED BY ADMIN: No one on this site should advise you to increase your dose. Only your clinician can do that. If you have signs of GCA or are concerned that you do, please get a medical opinion straight away.

[jinasc]

pubmed.ncbi.nlm.nih.gov/314...

It might be worth reading this and printing it off. Because of Covid your medics might not be aware of this paper - it was issued one month before Covid came along.

[Bcol]

Hi there, welcome to the site and when you have time a trip to FAQ's and a perusal of their contents is very worthwhile. Other than that nothing to add to the advice already given by PMRpro and DL.