The format of the site seems to have changed.

[SheffieldJane]

Are we no longer able to look at contributers’ previous posts, in order to give more relevant replies?

That appears to be the case with my iPad today. Anyone else?

[Koalajane]

Yes, I did have this problem on my iPad but it seems to have been sorted for me

[SheffieldJane in reply to Koalajane]

What did you have to do Jane?

[Koalajane in reply to SheffieldJane]

I don’t think I did anything, it just sorted itself. Just tried it again and it seems okay

[DorsetLady PMRGCAuk volunteer]

On iPhone at moment -seems ok. Maybe switch iPad of and on again -has it had software upgrade in last 24-48 hrs?

Update -just check iPad -ok

[autumnlass]

Hello SJ - on a different trajectory but similar to your question… is one able to retrieve one’s posting since you first joined PMRGCAuk?

[SheffieldJane in reply to autumnlass]

I have never tried - 6+ years. I somehow doubt it.

[autumnlass in reply to SheffieldJane]

I’ve been on since 2020. Just wished I’d kept a ‘flare diary’! This is the 3rd flare I’ve had trying to reduce from 8 - to 7.5. Now on 15 for 2/52 then 2 weekly down to 10 mg when GP wants another chat. He’s going to write to a rheumy for advice …. I bet they’ll say MTX?! 🤔. How are you now? I hope ok. I feel there is an underlying pressure with doctors and patients with PMR?

[Nextoneplease in reply to autumnlass]

If by pressure you mean tension, yes I do feel it. Feel it’s all a bit of a battle, only too often….!

[autumnlass in reply to Nextoneplease]

Pressure and Tension indeed. Although GP was very nice - cannot fault him. I feels it’s like playing a game of snakes and ladders! 🐍🪜x

[Nextoneplease in reply to autumnlass]

Snakes and ladders - that’s exactly how it feels - only it’s not a game….🤷‍♀️xx

[SheffieldJane in reply to Nextoneplease]

And there are too many snakes I find.

[PMRpro Ambassador in reply to SheffieldJane]

Was just going to say the same - mostly snakes ... Of a poisonous variety!

[autumnlass in reply to PMRpro]

Boa Constrictors?? 🤔

[SheffieldJane in reply to autumnlass]

Do you go back to the start when you flare?I found PMR quite straight forward to manage and didn’t flare, I was pretty cautious, stopping the taper at the first sign of trouble and using a pill cutter after 10 mgs, going down by 0.5 mgs. I got to 3 mgs and then got diagnosed with non cranial GCA/LVV. I find this much harder to read the symptoms. “ Feeling ill “ doesn’t really help my Rheumatologist help me. Adrenal insufficiency is clouding the picture, I am permanently exhausted - deathly. Thanks for asking. I refused Methotrexate, pain is the least of my worries now. Tocilizumab helped me to get down from GCA doses more quickly.

[autumnlass in reply to SheffieldJane]

Thank you. SJ. I thought I would get away at going from 7.5 to 13 but couldn’t manage it so went back to 15 where I’ve been ok for 2 days, and pain is ok. I find it so frustrating and demoralising. GP wants me to stay on 15 for 2 weeks. The same with 14/13/12/11/10. My system is fine on 8… and I did the DL reduction over 4 and 7 weeks. Nearly got to the final hurdle each time! Very frustrating! xx

[HeronNS in reply to autumnlass]

As far as I know, yes. I've gone back and looked at earlier ones.

[yogabonnie]

hi. I have no idea but relying here to see if I can reply at all! perhaps it fixed itself! Hi Jane!

[Nextoneplease]

Hi all

I’ve just clicked on some avatars at random, my own and a couple of others, and if I highlight ‘Posts’ I seem to be able to see all that person’s posts (didn’t read back, naturally, just checking they were there). Might help you with your flare diary, autumnlass? x

[SheffieldJane in reply to Nextoneplease]

Sometimes they give you a bit more background that enables you to give a more helpful response.