Bumps in the road
I first posted here around 3 weeks ago when I got the news I had PMR, well I had that news 2 or 3 years ago but didn't understand so stopped the pred after my first script ran out, after all I was cured right ? Well I know different now, what actually happened was a slow insipid relapse that I suffered until I couldn't dress myself or get out of the car. This is when I started back on 20mg of Pred around 3 weeks ago.
I started reducing 2 days ago but almost a quickly as the symptoms disappeared they started to return so I thought I had reduced too much too early. Something even more alarming was also present a 2 day headache and I found myself squinting to read. Thankfully I had read HERE what that might mean so called the GP today to discuss the taper and headache.
You are way ahead of me here and I knew what was going to happen. He couldn't see me today and not for another week but I am now up to 60mg for possible GCA oh and Im also now diabetic.
So its been a bit bumpy and no doubt someone will be looking at my temporal artery under a microscope.soon.
How long should I expect to be on 60mg and what is a normal tapering if GCA is diagnosed please ? I have complete faith in the GP who is treating me, he isn't my usual GP but he is the surgery expert on PMR/GCA and he seems to be well informed I trust him but still would like to hear others experience.