PMRGCAuk Week 6th-13th June

[Fran_Benson]

It's PMRGCAuk week at the beginning of June and we have webinars and fundraising planned.

The webinars will be available to charity members and non-members, and will cover a range of topics. If you are a member of the charity, you should already have received details of the webinars and I'll be posting the specific details on here next week.

Do look out for further details!

Fran

[Bcol]

All booked

[DorsetLady PMRGCAuk volunteer]

Hi Fran

Just a quick question -are webinars going to be recorded and available afterwards as I’m unlikely to make one of them. Don’t want to book and take slot away from someone else if I have to drop out at last moment.

Thanks

[Fran_Benson Partner in reply to DorsetLady]

Yes they will be. Just register, you'll be sent links for them all but it doesn't matter if you can't attend - you won't be taking the place from someone else.

I'll put full details on here next week. Just for now, I'm giving priority to our members, but there will be room for everyone so no-one needs to worry about booking later - we can always increase the Zoom capacity if we need to.

Also, we've been testing captions/transcription this week so there will be captions available for attendees with hearing loss.

[DorsetLady PMRGCAuk volunteer in reply to Fran_Benson]

Thanks -have got email so will book

[Gardenbay]

Hi Fran, i have been a member since March 2021 I received a booklet when I joined, and I have received local zoom meetings but nothing else. Have I missed things? I have not seen anything about the event in June.

[DorsetLady PMRGCAuk volunteer in reply to Gardenbay]

Do you normally receive NewsWire magazine by post or mail?

If by post, main charity may not have your email address even if your local support group leader does.

Check on main web page or email -

[e-mail] -add your membership ref so Fran_Benson can check

[Fran_Benson Partner in reply to Gardenbay]

Hi Gardenbay, as DorsetLady has said. Easiest thing to do is to message me and I'll look it up for you. I'll need to know your real name (don't post that here on the forum - a private message is fine though) and we can sort it from there. Fran

[agingfeminist]

I didn't get this announcement. I am a member...how do I register for a webinar?

[DorsetLady PMRGCAuk volunteer in reply to agingfeminist]

See Fran_Benson message to GardenBay above -or message her.

[agingfeminist in reply to DorsetLady]

thanks. have done

[Viveka]

Hi Fran can you tell me how to get access to the webinar recordings please? I'd like to listen to the GCA one in particular.

Many thanks

[Fran_Benson Partner in reply to Viveka]

Hi Viveka, email me on [e-mail]

[emsscot]

Hi: I'm a relative newbie to PMR and must admit I've been a bit overwhelmed. I didn't know - or just missed - anything about this charity. Would you please let me know how I can join? Thank you.

[DorsetLady PMRGCAuk volunteer in reply to emsscot]

See this monthly welcome post from Fran_Benson gives you info and links -

healthunlocked.com/pmrgcauk...

[emsscot in reply to DorsetLady]

Thank you DL. I followed your link and became a member.

[DorsetLady PMRGCAuk volunteer in reply to emsscot]

Good -well done

[emsscot in reply to DorsetLady]

Thank you again. This group is the best thing that has happened to me since being diagnosed with PMR. I live in Mexico and although my rheumy is very nice and seems competent enough, she has only ever had 3 PMR patients in her 15 years of practice. Initially, she wanted me to taper by 2 mg every 2 weeks which led to quite a bit of pain the first time I tried it. Having found DL, PMRPro and the other wonderful contributors here, I have been following your advice and what a difference it has made. I cannot thank each of you enough!

[DorsetLady PMRGCAuk volunteer in reply to emsscot]

🌸

[Fran_Benson Partner in reply to emsscot]

Hi emsscot, if you haven't already looked at the link that DorsetLady has provided (thank you :)), you can go straight to our website to join pmrgca.org.uk/how-to-help/b... and also find out details of our local groups - there may be one near to you - and also download an information pack.

[emsscot in reply to Fran_Benson]

Thank you. I followed DL's link and became a member.

[Fran_Benson Partner in reply to emsscot]

Great! I can see your membership on the system so you can expect a welcome email within the week.

[emsscot in reply to Fran_Benson]

Thank you.