Stuffed but working on it.: I do find this... - PMRGCAuk

PMRGCAuk

21,305 members40,394 posts

Stuffed but working on it.

ignatz profile image
22 Replies

I do find this alternative website very difficult t use but...a gem perhaps?

I am on the no1 and no2 best treatments- by any other name.

Polymyalgia Rheumatica Treatments

MOST EFFECTIVE

#1

Panafcort (Brand names: Panafcort)

Prednisone

Drug | 1332 reports

#2

Prednisolone (Category: drug)

Drug | 524 reports

#3

Methotrexate injection

Methotrexate

Drug | 236 reports

#4

Physiotherapy

Physical therapy | 113 reports.......

...........

#49

Exercise (Unspecified)

Physical activity | 11 reports

#50

Azithromycin

Drug | 1 reports

How is effectiveness calculated?

+

And am now avoiding....

MOST DETRIMENTAL

#1

Methotrexate injection

Methotrexate

Drug | 280 reports13%

stuffthatworks.health/polym...

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ignatz profile image
ignatz
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22 Replies
HeronNS profile image
HeronNS

The Stuff that Works website? I find it really peculiar.

HalleysComet profile image
HalleysComet in reply toHeronNS

Me too. I really don’t understand what it is all about.

PMRpro profile image
PMRproAmbassador

I did have a brief look once. And filed it ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Can’t be doing with it….

Kendrew profile image
Kendrew

Hmm! 🤔 No comment.

HeronNS profile image
HeronNS

I have to say at first I used to check in and offer comments, but somehow it never quite grew on me. I don't know on what basis they decided these were the best treatments - other than how many people said they'd tried something. Can't remember if they really collect accurate info regarding efficacy of a specific medication or treatment. Think it's probably mostly if not completely done by computer.

PMRpro profile image
PMRproAmbassador in reply toHeronNS

I got the impression it matched a story OH used to tell from uni. The lecturer got someone up from the group to do a mathematical proof on the board. At the end he asked for votes as to whether it was correct or not. The group voted it was correct - it wasn't. And the lecturer then said "Gentlemen - it goes to show democracy doesn't work in maths ..."

Just because people post votes that something worked, doesn't mean it really did ...

HeronNS profile image
HeronNS in reply toPMRpro

I seem to remember when you sign up they ask you what treatments you tried, and that could include a lot of stuff which doesn't work but neverthless it gets recorded.

Bcol profile image
Bcol

Like the others I looked at it, decided it wasn't for me and binned it. Some very strange suggestions which seemed to have very little to back them up.

icu2 profile image
icu2

it is data collecting…and offering no medical/ scientific support…only user comments.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toicu2

Precisely!..but then I am a sceptical Brit….😉

HeronNS profile image
HeronNS in reply toicu2

It's quite clear about that - says the more info from more people the more accurate the AI becomes....

Nightingales profile image
Nightingales

I looked into it and discovered it was described as a for profit company so stayed well away.

HeronNS profile image
HeronNS in reply toNightingales

I don't know how they could make money off it. Unless my adblock prevents me from seeing how.

Highlandtiger profile image
Highlandtiger in reply toHeronNS

Same here. I couldn’t work out what the business model was.

PMRpro profile image
PMRproAmbassador in reply toHighlandtiger

You can make a lot of money out of the advertising. And they possibly sell the information they gather.

Highlandtiger profile image
Highlandtiger in reply toPMRpro

That’s the thing - there weren’t any adverts. But yes, I guess they were selling the info to someone…🤷🏻‍♀️

PMRpro profile image
PMRproAmbassador in reply toHighlandtiger

Were there links to products?

Highlandtiger profile image
Highlandtiger in reply toPMRpro

No. That’s what puzzled me.

What they say is…

“StuffThatWorks helps people learn which treatments work best for their condition using smart, AI-based crowdsourcing.”

Irishfurbaby profile image
Irishfurbaby

Hi

I tried anything natural when I was diagnosed with PMR. Turmic is wonderful for me I still take it. I have weekly massages and did yoga or pilates. I bought an electric blan ket that really helped me at night to sleep. Mainly kept moving.

Good luck

HeronNS profile image
HeronNS

stuffthatworks.health/

ignatz profile image
ignatz

Good to read that it is not just me who finds that website a bit strange and useless. :)

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