Sleep

[Shortfoot]

Hi In July 2021 my pain started I noticed if I sat to long when getting up I had a hard time because I was stiff but once I got moving it was ok.Then it got so I had to roll out of bed so much pain could not cover myself up because my arms hurt.My mom had Parkinson’s so I figured that’s what I had so off to the doctor.Had a blood test it showed my inflammation markers were high, so my doctor said it was pmr because of the symptoms I was experiencing.Did not get into the specialist till November so I suffered till November I could hardly get around for pain also experiencing pain on the side of my head towards my eye. In July after seeing my doctor I started to eat healthy I stopped all sugar and carb no bread ,cake cookies etc the only carbs I would eat were from vegetables and blue berries and strawberries and no dairy. I have stuck to this diet faithfully and because of this I have lost 27 pounds.And I also drink almond milk with cinnamon,ginger and turmeric and I have Kefir and kombucha everyday. I have to make myself eat because I am not hungry.So when I saw the specialist and had blood work all my markers were normal so she went by how I was feeling so that’s when I was put on 40 mg of prednisone for gca I felt wonderful no pain, high energy then in December started to reduce so far pain is ok a little bit if I over do it more in my neck going up to my head .But my markers are still normal.in December had a biopsy it was normal so that’s when she said to reduce my meds.So now I am down to 11.5 but I cannot sleep and also having hot flashes during the day and night.I have started to eat cottage cheese in the morning with my prednisone so far that’s ok. Also I have a thyroid condition been taking meds for that for 20 years. If I try to have afternoon sleep I cannot stay asleep I keep waking up every 15 min. So that’s where I am at I am very frustrated because I can’t sleep. Any feed back I truly appreciate it.

[DorsetLady PMRGCAuk volunteer]

Replied to your previous post have you read replies -

healthunlocked.com/pmrgcauk...

[piglette]

I had hot flushes from the pred but they did go away when I got below 10mg in my case. I never had trouble sleeping until I started on pred and find it really annoying, but have given in to it and listen to the radio at night.

[Telian]

I had trouble sleeping on the higher doses of Prednisolone. Rheumie gave me amitriptyline 10mg at night. Not sure if you get it where you are but I was near euphoria as only slept 2 hours. It helped until I got to 4mgs pred then could stop it. Best wishes.

[Telian]

Congratulations on the weight loss.