Good evening all, I’m a true newby!
After 18 months of back and to, to the GP with shoulder pain, worsening depression and feeling lethargic I was made to feel that it was all in my head. I started to get a terrible headache and went for a private eye test. The optician was amazing and wrote a letter to my GP straight away. Finally I had blood tests and was diagnosed with GCA and PMR. I have a few other conditions, including only having one kidney and pre-diabetes. My GP started me on 30mg Pred, and put the fear of god into me.
He reduced the dose quickly to 20mg and the headaches started back, so I’m now back on 25mg, and having slight headaches, and pain through my eye.
I’ve put weight on, although I’ve been careful with what I eat, my face and neck are huge, but they worst is the fatigue. I can barley shower, and I am off work. Also my Vitamin B12 levels have dropped to 185, so I guess that’s not helping either.
I have now become diabetic and also taking Metformin which the side effects are fatigue!
I guess the worst has been no support or information, here are the meds off you go.
I am on the waiting list to see an endocrinologist, but no other referrals made, no offer of support and I just feel like I’m sinking.
The other thing that is bothering me, is I am getting kidney pain, I don’t know if that is normal with pred?
Sorry for the long post, I guess it’s quite cathartic to be able to let it all out, as the last 3 / 4 months I’ve had “come on, pull yourself together, sitting in the house isn’t helping”