A bit gutted šŸ˜ž : Hi all, Havenā€™t posted in a while... - PMRGCAuk

PMRGCAuk

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A bit gutted šŸ˜ž

GerriMc profile image
GerriMc
ā€¢21 Replies

Hi all,

Havenā€™t posted in a while. Iā€™ve been doing fairly well and have been hovering between 1 and 2 mgs of Pred per day. Iā€™ve just had the results of a Dexascan and itā€™s not good. I had a Dexa before I started on Pred four years ago which showed Osteopenia, no surprise as I was over sixty. I was prescribed Risedronate , which I took for about a year. I was convinced though, that it was making my teeth loose and I was also afraid given the problems others had had with it so I stopped taking it. My lumbar spine now has osteoporosis. The t-score for the L2, L3 vertebrae has gone from -1.6 to -2.8. And one hip which was in the normal range is showing borderline osteoporosis too.

My diet has been really good and I exercise a lot so Iā€™m really surprised at this.

Iā€™m expecting a big ā€œI told you soā€ from my Rumie. Heā€™s actually a nice man so maybe he wonā€™t be too unkind.

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GerriMc profile image
GerriMc
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21 Replies
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PMRpro profile image
PMRproAmbassador

What a shame you hadn't had the recommended 2-yearly dexascan so they would have had some warning. No doubt they will want to restart the risendronate?

GerriMc profile image
GerriMcā€¢ in reply toPMRpro

Yeah looks that way. I should have pushed for another scan. Donā€™t know what else I could have done if Iā€™d had the warning earlier though. Iā€™ve been doing all the recommended things.

PMRpro profile image
PMRproAmbassadorā€¢ in reply toGerriMc

Just bad luck really. But it is possible that the current dexascan has over estimated the deterioration - the angle at which the beams are sent through the bone can make a big difference to the reading apparently

GerriMc profile image
GerriMcā€¢ in reply toPMRpro

Oh, thanks, didnā€™t know that. Hopefully thatā€™s the case, but Iā€™d probably be better assuming the worst. šŸ™„

PMRpro profile image
PMRproAmbassadorā€¢ in reply toGerriMc

And remember - lower bone density doesn't automatically mean the bone is more brittle - it may even be quite flexible, especially given your exercise history. But they can't measure that and get a number ...

GerriMc profile image
GerriMcā€¢ in reply toPMRpro

Thanks a mil. Youā€™ve made me feel a lot more positive!

PMRpro profile image
PMRproAmbassadorā€¢ in reply toGerriMc

There are a lot of ways to reduce your risks - and even before bisphosphonates hit the market the rate of hip fractures was falling, not least because we tend to remain more active much longer. Both hip and spinal fractures can be reduced by sensible things - like putting the light on when you get up at night ( OH managed to fall and got a spinal fracture because he didn't!), Careful monitoring of medication, fluid intake, vit D is crucial too. Removal of trip hazards of all sorts is also important.

GerriMc profile image
GerriMcā€¢ in reply toPMRpro

Iā€™ll have to do that, my OH is guilty of leaving things lying around, actually Iā€™m a bit guilty of that too.

Pr0jection profile image
Pr0jectionā€¢ in reply toGerriMc

I'm the same as you, GerriMc albeit that much older at 78. I knew I had mild osteopenia before I started on pred and had a dexascan in May 2020. After I was diagnosed and had been on prednisolone for 8 months I decided to have another scan in March 2021 and found osteoporosis in the lumber region - L1. I was surprised that it could occur so quickly as I'd been exercising, eating very healthily, etc. I was given a prescription for alendronic acid but decided not to take it. I've upped my Vit D3, and continued taking magnesium, Caltrate, goat's kefir (Vit K2), low carbs, no sugar, lots of protein, veg, full fats and I will wait and see what the next dexascan brings in around 18months time. Perhaps, as PMRpro says, the dexascan overestimated the deterioration. I remember the technician was certainly in a hurry to get off for lunch and rushed me through the procedure! Good luck...

SheffieldJane profile image
SheffieldJane

Sorry to hear of this blow. Donā€™t despair though. I would research everything I could do to improve my bone health. People do improve these readings. I think Heron turned things round by means of a programme of informed diet and exercise. It may also be that another of the Biophosphonate group of drugs would suit you better, not everyone has trouble.

GerriMc profile image
GerriMcā€¢ in reply toSheffieldJane

Thanks Jane, Iā€™ll definitely do more homework. Iā€™ll look again at Heronā€™s program too.

SheffieldJane profile image
SheffieldJaneā€¢ in reply toGerriMc

Did you see Heronā€™s post? Probably in response to you. She has posted a new thread.

GerriMc profile image
GerriMcā€¢ in reply toSheffieldJane

No, Iā€™ll look for it. Thanks!

Sandradsn profile image
Sandradsn

I'm really sorry to hear this.Do you take Adcal? Have you been having pain?

GerriMc profile image
GerriMcā€¢ in reply toSandradsn

I take Calcichew, it has Vit D added but I take a further D supplement with K2 and Magnesium.

GerriMc profile image
GerriMcā€¢ in reply toSandradsn

Actually, I do have pain in the lumbar area. Iā€™d been assuming it was muscular though. Wasnā€™t aware that osteoporosis caused pain. Thank you, something else to look into.

piglette profile image
piglette

Have you been taking vitamin D with calcium? Have you been trying weight exercises? You can try another Bisphosphonate although Risedronate seems quite popular.

GerriMc profile image
GerriMcā€¢ in reply topiglette

Thanks, yes, Iā€™ve been taking calcium, Vit D, K2 and magnesium every day. Iā€™m a former runner and rower and while not able to do as much as I used to, I still jog and use my rowing machine regularly. I also try to do weights about 3 times a week. So I really tried to do everything right!

piglette profile image
pigletteā€¢ in reply toGerriMc

It is so unfair isnā€™t it? You could wear chain male and do lots of heavy shopping!

HeronNS profile image
HeronNS

Just go to my profile (click on my name here) and you'll find today's post with a video which has some of the information you may be looking for. However, have you been checked for "secondary causes of osteoporosis"? If, for one example, you have a problem with the parathyroid glands (not the same as thyroid gland) your body may be taking too much calcium out of the bones and no supplements or medication will help until that is sorted.

osteoporosis.ca/about-the-d...

GerriMc profile image
GerriMcā€¢ in reply toHeronNS

Thank you. No, Iā€™ve never heard of parathyroid problems. Iā€™ll have to see about that.

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