Another site with PMR stuff

[ignatz]

Has anyone else joined this lot? stuffthatworks.health/polym...

689 CONTRIBUTORS in the PMR section; logging treatments; etc. May eventually be useful?

[HeronNS]

🙋‍♀️

[DorsetLady PMRGCAuk volunteer]

Seen it, but found I got a lot of “stuff” I didn't really want....but some was interesting,

[jinasc]

Do you know the source of the site and who runs it? Is it well administered?

I only ask because long before I found Patients Exp and then this site both controlled and well ad ministered. I looked at a couple of others and decided no thanks.

[PMRpro Ambassador]

Never heard of it - and it asks for too much info!

[Bcol]

I've seen it, joined out of interest but not impressed. Think we are all spoilt by this forum. I will not be staying with it.

[MrsNails]

I looked at it but they wanted to know far too much info.....

So.... not for me l’m afraid....

[piglette]

I am not sure what more it is offering compared to HU. I did not like the way it does not really explain what you are signing up for initially. It may be brilliant of course, but I never got that far.

[PMRpro Ambassador in reply to piglette]

No, me neither - not using FB and releasing that info and asking for my phone no is a step too far. I'm now gettins adds for it on FB ...

It sounds more a "this worked for me" option with no moderation to keep woo out ...

[DogAgilityObsessed]

I suppose I’m fortunate that the link didn’t work. I confess to periodically spending too much time on Facebook. People seem so much less tolerant these days possibly because of covid. And I worry I’m the same. Every time I see an idiotic post on the PMR group there I get very close to sticking my two penny worth in. Then I remind myself to scroll on by.

[Constance13 in reply to DogAgilityObsessed]

Good Boy! It would only be deleted if you did a negative rant.🤪

[PMRpro Ambassador]

Since I am now getting ads for this site on my FB feed I thought I'd add this to the thread:

stuffthatworks.health/about

which explains the thinking behind it. It is more to give than to receive if it is used properly - you tell them what worked for you by answering questions.

[icu2]

used it before Health Unlocked. thankful there was a site with some info at that point. i believe out of Israel. monitored by doctors there , but not to give advice. i believe they are trying to gather info for research purposes.

can’t remember “prying questions”. i am not one to give this out but perhaps just omitted it. it was a lifeline when i had nothing else and it did steer me towards Health unlocked.

[PMRpro Ambassador in reply to icu2]

They wanted my FB details or my phone no. to register. No. Not unless I know more about it,

[icu2 in reply to PMRpro]

FB so they could advertise...” reach out” ...on your page...i beleive

[PMRpro Ambassador in reply to icu2]

They manage to do that without it!!!!!

[piglette]

They insist on a mobile phone will not take a land line, does this mean lots of ads coming to your mobile?

[Highlandtiger in reply to piglette]

From memory your mobile number was just to receive a security code to enable you to log on. I joined a while ago but haven’t been particularly active. I haven’t noticed ads or spam or anything coming to my mobile.

[piglette in reply to Highlandtiger]

They can send a code to your land line if they wanted. Not so easy to post ads to though.

[Snuggs]

I nearly joined but thought I would see all the responses first. Glad I did really as I think I will leave based on the info on this site 😅