Gp or other

[Uglow]

Hi my Gp diagnosed PMR iv had blood tests after extreme pain in legs arms groin muscles. Will I get referred to a rheumatologist or will my Gp look after my PMR. I’m on prednisone 15mg seeing him tomorrow for review. Just uncertain how this role.

Thanks

[DorsetLady PMRGCAuk volunteer]

If your PMR is straightforward GPs are capable of treating you. It is recommended that you see a Rheumy once, but not sure how easy that is at the moment, and not every PMR patient does anyway.

You might like to have a look at this - just for additional info - healthunlocked.com/pmrgcauk...

[Uglow in reply to DorsetLady]

Iv been a bit dizzy here and there and palpitations I’m going to tell Gp tomorrow. I don’t really want to see docs if I don’t need but early doors so I’m a novice. But thanks for that.

[PMRpro Ambassador in reply to Uglow]

I forgot to say that a friendly and good GP who listens to you is preferable to a poor rheumy!!!

[PMRpro Ambassador]

In the UK a lot of patients are managed by their GP anyway and Covid probably makes that even more likely. If it is straightforward it is fine - atypical patients - young for PMR, don't respond well to pred, struggle to reduce the dose or develop signs of GCA - should be referred. If you get signs of GCA that should be as an emergency - probably the only emergency a rheumy gets to see!

[Koalajane]

I only saw my GP when I was diagnosed and for about 9 months after. If I have a problem I will see my GP and normally have an annual review.

[piglette]

Around seventy five per cent of people with PMR never see a rheumy. However there are some GPs who do not seem to know much about PMR or are afraid of steroids it seems. In that case clammer for a rheumy, if you have a good GP you may find they are actually better than a lot of rheumies.

[ChinaWuntoo in reply to piglette]

My GP is better than my rheumatologist. I was referred by a locum who certainly understood PMR; I think she may have followed orders to put me in touch with a consultant But my rheumatologist is useless. If I develop GCA symptoms I will go to a different hospital to make sure I miss that rheumatologist. Fortunately I live within striking distance of Moorfields Eye Hospital

Stick with your GP if possible and don't be afraid to refer him/her to academic papers especially those authored or co-authored by Prof Dasgupta.

[piglette in reply to ChinaWuntoo]

I have had some useless rheumatologists too, I have now given them up as part of my New Year resolution!