Well finally got to see my gp and had my rant and rave about the receptionist and turns out the doctor wasn’t even shown my results.
Gp is fairly sure it’s pmr and started me on Pred and have to see him in a weeks time. Because I am only 55 he is also referring me to rheumatologist just in case it isn’t pmr and some other rheum condition. Will see how we go for the next week. Thanks to everyone for the support so far.