Taking my own advice: Increasing neck pain. Stiff... - PMRGCAuk

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Taking my own advice

HeronNS profile image
17 Replies

Increasing neck pain. Stiff neck. Blaming arthritic cervical spine. Remembered nights before PMR diagnosis going to bed with a scarf to keep my neck warm. Not able to use shoulders properly. Blaming osteoarthritis. Physio and exercises not helping that time or this time. Worse. The last few days other analgesics ineffective, although they still help knee.

Breakfast time here, just took 10 mg pred, by far highest dose in years. Nuisance as I only have 1 mg tablets but if it works....

Sigh.

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HeronNS profile image
HeronNS
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17 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Let’s hope so...and you can reduce back down quickly.

SnazzyD profile image
SnazzyD

Oh dear you really will be rattling with all those 1’s. Hope it works.

nuigini profile image
nuigini

I know you feel deflated Heron, but I wouldn't hesitate if I was feeling the type of neck and shoulder pain you're describing. You've been wrestling with a lot of issues lately, perhaps this will give you the relief you're body needs.

Charlie1boy profile image
Charlie1boy

My goodness - you have been suffering since you got right down on your pred dose. I can't offer any advice, but I am sorry for you.The higher doses of pred certainly masked the painful arthritis in my ankle, but this has now reverted to normal now that I am on 1mg. 😫

Hopefully, you'll be the bearer of better news on the pain front when you next post.

Blessings

Paddy

karegodd profile image
karegodd

So sorry to hear this. One day at a time. Do what you can to feel ok today.

MrsNails profile image
MrsNails

Good Call Heron! You knew deep down you had to try & let’s see if it makes a difference 🙏🏼

Take Care & keep us in the loop as to how you’re doing.

MrsN x

TheMoaningViolet profile image
TheMoaningViolet

Oh dear, sorry to hear that. If anyone knows what to do and how to do it, it would be you. I am so sorry that you have to make such an effort all the time; it's exhausting. I hope the pain goes away at least and you get to the bottom of what's happening with the knee. Thinking of you and wishing you all best. x

Telian profile image
Telian

I know how disappointed you must feel. Let’s hope you can reduce back

quickly. 🌹

HeronNS profile image
HeronNS

Guess this means mysterious reason for elevated CRP probably found, and I won't be able to reduce pred to 1.5 mg before next blood tests as doctor asked. Seems like CRP went up before reappearance of symptoms. Isn't it supposed to be other way around?

dartmoorlass profile image
dartmoorlass

Oh dear Heron, so sorry you're having so many problems. Do hope you'll get some relief from the extra pred and as DL says, you could then reduce a bit more quickly. Very disappointing for you after your earlier pred reduction efforts.

Smokygirl profile image
Smokygirl

So sorry Heron—- you are having such hassle at the moment. Hopefully your plan of action will sort it all out. Huge hugs xxxx

Grammy80 profile image
Grammy80

So happy you are doing what you can to be comfortable. Take good care.💖

lesley2015 profile image
lesley2015

How frustrating - hopefully you will feel better and then be able to reduce quickly.

Best wishes

Marlenec profile image
Marlenec

So sorry you're having more problems, hope the Pred works.

Thelmarina profile image
Thelmarina

So demoralising! But still thankful to get relief? 😀

Viv54 profile image
Viv54

Sorry to hear this, im like it atm pains all over !! feel a bit like a robot when moving ! Think being stuck indoors is playing apart of this for people. I am doing my allowed hour out of the house , but trouble is with all the aches and pains its hard ! Fingers crossed Spring is just round the corner. Make us all feel a lot brighter. Chin up xx

I'm so sorry for all you pain sufferers... it's miserable and this rubbish wet weather defo makes bones and muscles worse. When in pain I stiffen against it which makes it even worse so now I make myself go with the pain, lie down with head phones calming music or white noise, lavender pillow, try cold and warm microwave bean pads, anti inflamm tabs and creams, scream into a cushion, get immersed in a movie or bubble bath or five jaeger bombs, , and then when none of that helps, have a little cry... you're not alone as your replies show how much folk care about your suffering... there's hope on the horizon and spring on it's way.. I hope and pray the tabs help you find pain free peace... , best wishes Polly.

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