results: so i got some results back today and it... - PMRGCAuk

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snoopy29 profile image
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so i got some results back today and it would be great if i knew what they meant :) cpr 47 and esr was 22 last time and its now higher but the reeptionist couldnt give me a figure as the doctor hasnt read it yet, anyone know what these numbers mean ,

many thanks

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snoopy29 profile image
snoopy29
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

This is a rough idea of ranges -

From Patient uk 2018

ESR: the normal range is 0-22 mm/hour for men and 0-29 mm/hour for women.

CRP: most people without any underlying health problem have a CRP level less than 3 mg/L and nearly always less than 10 mg/L.

However they do vary from person to person - and my normal may not be your normal. Plus these are not tests that are done regularly (unless you have an illness) so you don’t know what your normal would be.

What we say is if your markers are rising test on test, then that may be cause for concern... so probably need checking.

However inflammation markers can be affected by many things - not just your PMR or GCA.

snoopy29 profile image
snoopy29 in reply to DorsetLady

thank you, got my rhumatology app on the 1st sep so not to far away now, its been a long 5 months :(

MrsNails profile image
MrsNails

I attended a PMR Roadshow some years ago & one of the Speakers said he always considered a CRP above 10 to indicate PMR if the symptoms matched.

Mines rarely been below 10 but not as high as 47 but some people don’t have raised inflammatory markers anyway about 20%

I’m glad your appointment isn’t too far away.

Good Luck 🍀

MrsN

snoopy29 profile image
snoopy29 in reply to MrsNails

thank you, counting down the days :)

MrsNails profile image
MrsNails in reply to snoopy29

Please let us know how you get on, in a New Post 🍀

snoopy29 profile image
snoopy29 in reply to MrsNails

i certainly will thank you , read through all the posts here most days so see what i may have ahead of me , :)

PMRpro profile image
PMRproAmbassador

When you do get the results properly there should be numbers in brackets after the result - those are the normal ranges for the lab that did them. Useful to know.

If the ESR now is higher than it was last time it is raised and the CRP is almost certainly raised.

In acute phase I was 87 and 14. Awaiting next bloods to see how the steroids are impacting. However well informed we are on here and some of you are incredibly knowledgable, doctor knows best and also, much more importantly, holds the prescription pad 😀

PMRpro profile image
PMRproAmbassador in reply to

While I would never disagree with the second bit - he holds the prescription pad, I will say we have come across plenty of situations where the doc doesn;t know best when it comes to steroids and PMR!

123-go profile image
123-go in reply to

I respectfully disagree that all GPs know best. Some are much more aware and knowledgable of PMR/GCA than others as evidenced in many posts. I wish you well on your journey and look forward to hearing how things progress for you. 🙂

in reply to 123-go

Absolutely right. The one rider to that is that there are conflicting responses to the original post. Whilst you and increasingly me, have expert patient knowledge, I would rather trust those trained formally in the first instance, particularly with powerful and potentially life changing drugs. There are members “trusted” to self medicate based on their understanding and knowledge; a form of earned autonomy based upon, expert patient knowledge - completely appropriately so. Taking advice from a bulletin board is so useful and over the past week, this group has been invaluable to me in terms of support and advice. The one thing other than to note the comments I would not consider is changing my drug regime as it suited someone else. We are all individual, our cases are different and this disease is complex. Changing medication dosage unsupervised is dangerous and carries huge risk, particularly based on anecdotal evidence.

123-go profile image
123-go in reply to

I'm pleased you're finding this group helpful, Theoldch, and hope that you continue to do so. If you're able to join a future Zoom meeting led by an expert with members' contributions you will find that useful too. Notification and invitation will appear here. 🙂

I would add that I'm by no means an expert but since my diagnosis in early 2018 I am learning all the time.

in reply to 123-go

Oh yes please!!!!!

Constance13 profile image
Constance13 in reply to

"doctor knows best"!!!! It gave me a laugh anyway!😂😂😂😂

diana1998 profile image
diana1998 in reply to

Both my rheumie last seen 4 years ago and numerous GPs know very little about PMR in comparison to the experts on this site. Their aim is to get one off pred ASAP (mostly impossible, very painful and very stressful), have no idea re diet and exercise to help and have never heard of DSNS method. One GP said "if you can raise your arms it's not pmr, take paracetamol and come back in a month" so 3 days later in agony and just before Christmas I went to A&E, was there all day and put on 30mg for very active pmr. I now self administer pred with permission according to symptoms and have blood test every 3 months. Enormous Thanks to all the wonderful Pro Experts.

Ask the surgery to send you a copy by email or snail mail . You will then see the items tested on the left the values in the first column and the standard expected ranges on the righ (third column)

CRP expected range 00 -4.00 mg/L ESR 1.00 -30.00 mm/h yours appear to be slightly raised ring the GP tell the receptionist you are in pain and ask to be put on the triage list you should then get a call back fairly quickly so you can discuss the results with the GP good luck

snoopy29 profile image
snoopy29 in reply to

Thank you, hopefully speaking to the gp today once she has seen my blood results

Lochy profile image
Lochy

I had a face to face appointment with my rheumatologist last week. My ESR is always raised but this time she advised that it wasn’t alarmingly so as the equation they use is your age + 10 divided by 2 and if your ESR is below that it’s ok! It’s also different between women and men. I’d never been told this before but it puts raises markers into perspective.

Mind you my markers are regularly raised with or without symptoms!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Lochy

I think that formula is a bit old hat! Used to be the case, but not any more....and led my GP into misdiagnosis.

PMRpro profile image
PMRproAmbassador in reply to Lochy

She's probably at least 10 years out of date!!!! Now they realise that the increase seen in so many older people is not a natural progression - it is because of underlying undiagnosed inflammatory conditions. Not age per se.

piglette profile image
piglette

As the others say ESR and CRP does tend to vary. Mine are always very high in the 50s and 60s. It really depends how you feel on the other hand rather than what the tests say.

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