Hello, for anyone who is interested I live in the United States and finally had a first rheumatologist visit. I opted to go to a specialist at UC Davis and he was fantastic. He appears to be very knowledgeable about PMR and GCA. He is questioning my potential diagnosis due to the need for the high dose of prednisone ( I’m currently requiring 40mg to control my symptoms) but he has not ruled it out and does not care that I am 49 and therefore “ it can’t be PMR”. I am scheduled to have an MRA next week to look for extracranial giant cell arteritis. He has also ran a whole host of other tests looking for other potential differential diagnosis. So far I am very pleased. He did order me a 90 day supply of prednisone and is not trying to yank me off it.
In other news, for any of you who recall my discussing the pharmacist that refused to refill my prednisone, well I did in fact file a formal complaint. And took my new prescription for the 90 day supply to another pharmacy where it was promptly filled no problems.
Hope everyone is well!