Hi! I live in California, and just started reading this forum several days ago. I was origiinallly diagnosed by my GP with GCA about 12 years ago. However, the bilateral biopsies were negative, so the the rheumatologist said I didn't have GCA. My GP told me he believed that I did. I was on Prednisone 60mg for about 2 weeks.
Since then, I have had a roller coaster life with regarding the GCA diagnosis. Several times I have been put on Prednisone 60mg for varying amounts of time, and once with Methotrexate.
About 6 months ago, my present rheumatologist diagnosed me with PMR. In mid June, my ESR was 85 and CRP 2.5. I felt terrible, stiffness, pain in shoulders, hips, pelvis, scapular area. I also began having severe headaches and jaw pain.
A week ago, my vision blurred, and I had difficulty reading words with my left eye. I saw an opthalmologist immediately, who diagnosed me with definite GCA. I am now taking 60mg of Prednisone, and started a weekly dose of Methotrexate 10mg, so I can hopefully cut back slowly on the Prednisone.
I am experienceing nearly daily frontal headaches, severe weakness in my legs when I'm fatigued, elevated BP and palpatations between 3-6am. I also have jaw pain off and on during the day. My rheumatologist is rechecking my blood tests in another week, will continue to raise the Methotrexate dose.
I saw my GP for the elevated BP and palpatations yesterday. My EKG was normal, as were my electrolyte results.
Have any of you experienced some of these symptoms, or have any suggestions for me. I do think I am trying to do too much right now, and need to rest. Getting very little sleep from 3-6am. Started Melatonin 3mg and Passionflower tea last night per GP.
Thanks so much. So glad to have found this sight. My next post won't be nearly so long.