PMR and age, my reumy sais I'm too young - PMRGCAuk

PMRGCAuk

21,317 members40,425 posts

PMR and age, my reumy sais I'm too young

Pirnilla profile image
9 Replies

I was diagnosed in dec -17 and getting on Pred was a total relief for me. I have been pain free since I started. I have now tapered from 30 to 10 mg.

2 weeks ago I had my first app with a reumy. He was absolutely certain that I don't have PMR due to my "young" age, I turn 48 this year.

I had several of the typical signs of PMR, pain in the right places, raised bloods and Pred helped in a couple of hours. He wants me off Pred by June, making a faster tapering than I think is wise.

I am scared but at the same time I hope he is right!

Written by
Pirnilla profile image
Pirnilla
To view profiles and participate in discussions please or .
9 Replies
PMRpro profile image
PMRproAmbassador

Well - he MIGHT be right but on the other hand he's very likely talking rubbish. It is UNUSUAL in under 50s but not unheard of and ther eis plenty of stuff in the medical literature warning about that attitude which leads to cases being misdiagnosed.

Medicine doesn't work like that - no-one tells your immune system that it has to be 50 before it can turn on you and cause PMR. The international guidelines say "over 50", that isn't carved in stone.

There are different forms of PMR including, it is thought, a reactive form that often lasts a shorter time. Hopefully...

But when it all comes back as you reduce - what's he got in mind then?

HeronNS profile image
HeronNS in reply toPMRpro

Isn't there a disease with a Japanese-sounding name beginning with "t" (?) which is almost exactly like PMR but occurs in younger people? Is it treated the same way?

PMRpro profile image
PMRproAmbassador in reply toHeronNS

Takayasu's arteritis - histologically identical to GCA rather than PMR but affects lots of other organs too.

1Purplecrow profile image
1Purplecrow in reply toPMRpro

Holy Smoke PRMPro!!! Is there anything you dont know⁉️

Happy Easter, keep up the amazing stuff❣️ J

PMRpro profile image
PMRproAmbassador in reply to1Purplecrow

Loads!!!! But Takayasu's is part of the GCA/PMR specialist subject...

1Purplecrow profile image
1Purplecrow in reply toPMRpro

So now We know! Carry on 🤓

Pirnilla profile image
Pirnilla in reply toPMRpro

I am tapering 2,5 mg every second week from 12,5 to 0 and the plan is to be off Pred in June. As to the adrenal gland it is too fast a speed I think but I got a second opinion on it from my GP who sais that it should be fine.

I expect to reach some kind of level where my body either gives me my PMR pain back or takes me into problems with too fast tapering.

So far so good.

PMRpro profile image
PMRproAmbassador in reply toPirnilla

One is left wonder how often the GP has had patients on moderate dose pred for more than 4 months - but you probably will be OK as far as your adrenal function is concerned after less than 6 months. If it is PMR that is another question altogether. Good luck.

Estellemac profile image
Estellemac

What about people who go through menopause very early some in their 20-30s??? We are not all identical so whilst you may be too young to fit the profile data it's also not impossible. Let's hope you haven't got it and its something he can diagnose and treat.

Not what you're looking for?

You may also like...

Maybe my reumy was right after all?

Some of you have followed my odd Journey meeting a reumy 1,5 month ago telling me that he was...
Pirnilla profile image

Is it PMR, Old Age or what?

Hi, haven’t posted for a long time, but since I get no real answers from my Rheumatologist, thought...
Dinty123 profile image

PMR and CLL

Hello Experts on the Forum, it's been a while since I posted. I was originally diagnosed with PMR...
Pocketdog profile image

Rheumatologist says I'm too young for PMR and I have reactive arthritis following viral infection

I've given a run down of my history on my profile.... in brief, diagnosed with PMR in Dec 2019 and...
IncogEve profile image

Can you have PMR and Rheumatoid Arthritis?

I am a 49year old and for just under 3 years I have had PMR. Have been diagnosed and treated since...
Runrig01 profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.