My quick tour through the PMR world has been interesting, and you folks have helped me understand a lot about this highly variable and often confounding diagnosis.
On Dec 31, 2018, I took my last 1 mg dose of Prednisone, after an 11 month taper.
I’m happy to report that at one year OFF prednisone, my “niggles” are much reduced and I’ve regained some muscle mass and strength. My wrists hardly hurt at all, and hand stiffness is greatly reduced. My hips are still stiff upon getting up from sitting, but that seems to be my new normal. My hair is growing in again (but no curls), and my weight (which only went up a little) is back to normal. All is good!
Wishing good things to all of you in the new year!
Written by
OutdoorsyGal
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And in the past year I’ve learned a lot about overdoing and pacing myself. Fortunately my 68 year old husband is slowing down a bit too, so I’m not struggling to keep up.
Always good to get news from the "other side" so to speak, although your venture across the border was more courageous than most. I'm going the standard way, currently tapering to .5 mg and actually feeling really well, touch wood!
I wasn’t brave. I totally relied on my MD to manage the taper and didn’t know there was any other way to taper till I found this forum, when I was almost done.
I had doubts a year ago about whether I could STAY off prednisone, because some stiffness recurred, and new wrist and hand pains developed, too.
But nothing like the initial onset of PMR, and despite these setbacks my inflammation levels stayed close to normal, and I gradually regained strength. I do feel much less strong than before, but some of that could be aging.
That's amazing ! I'm so happy for you , a full year and it's going to get better everyday , it does give me hope to hear stories like yours and inspires me to stay positive.
Fatigue has not been an issue for me, before, during or after treatment. It was mainly disabling stiffness and pain, limiting my ability to get dressed or brush my hair.
(My post about fatigue was to ask if there was a link between deathly fatigue and extreme morning stiffness, based on others’ comments on the forum.)
That's great! It's always good to hear how others get on once they're hitting low doses or off pred altogether, and your post gives me hope, so thank you! Continued good luck your way! X
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Those new to PMR
Happy New Year (and good riddance to the last one...)
It's me again...finally.
time to get real!!, the goal is learning to live with PMR
