A few days ago a person was wishing to hear about people who are now in the 0 Predisone Club. At this point I feel that I can tell you about my personal experience. You will have to look on my profile to hear about how it started and how BAD it was. I have been off Prednisone for about 10 days now.
I started at 20 mg for a couple of weeks and then down to 15 mg. I went faster than my Rheumy had suggested and if I felt ok I would drop some more. I kept forging ahead and had one flare at 7 mg. at about 3 months along and then went to 10 for a couple of weeks and then continued going down by 1/2 mg. every 10 days depending on how I felt thereafter until I got to 3 and then went down by 1/4 mg a week to zero. IT WASN'T EASY as I had pain and soreness and fatigue continually but yes my whole goal was to get off of Prednisone before I got a co-morbidity from it. I know that this will make a lot of ladies on here's hair stand up on end, but do you want the truth or not?
I turned to God knowing that he was in control of my future and felt he allowed me to suffer this disease to wake me up to the fact that I was putting him on a shelf in my life instead of communing with him daily. When you are put on your back you look up.
My PMR beginning date was March 22, 2019 and I had weened off by November 24th 2019. Almost exactly 8 months! NOT BAD if I say so myself.
The last 2 weeks I have had SEVERE EXHAUSTION day and night without sleeping well and I thought it must be my adrenals. For 3 days I barely got out of bed! I have a finger oximeter that measures heart rate and oxygen and shows the zig zag heart beats on a little graph. I put it on and it was beeping because my heart beats were below 50 per minute. Bradycardia. I also was feeling like my heart was fluttering and skipping a beat now and then! My oxygen seemed to be holding though even with such a slow heart. It was like this for 4 days so I got depressed and prayed some more. I rested a lot and made an appointment with the GP. She was going to order me a heart moniter to wear and get me a synacthen test. Long story short before I got this heart monitor or the synacthen test my heart rate went up and I stopped feeling the skipped beats. I am feeling energetic and GOOD and so I am overjoyed!
One more note, I did exercise (walk mostly) during this whole ordeal whenever I could and lately I am even able to do some of the tough exercise tapes that I used to do. My figure is almost back and I might even get myself a little botox and some new clothes. I am saying all of this to let you know that you can have a TOTAL comeback. Oh sure I could have a relapse but I am going to live without fear daily thinking about it. I will post in a while with any updates and I am praying for all of you to get through this too. God Bless
Written by
lemarie1
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Thank you so much. I glanced at your profile and see you have had quite the ordeal. I will certainly say a prayer for you and do hope that you will see the end of pain soon.
Well you know it says in the Bible that even if you only have faith the size of an mustard seed (tiny) that you can move mountains. So this mountain can be removed from you and that is what I want for you.
Matthew 17:20 - And He said to them, Because of the littleness of your faith; for truly I say to you, if you have faith the size of a mustard seed, you will say to this mountain, 'Move from here to there,' and it will move; and nothing will be impossible to you.
Another verse in the Bible says.............. Jesus told the crowd another story. He said, "The kingdom of heaven is like a mustard seed. Someone took the seed and planted it in a field. It is the smallest of all your seeds. But when it grows, it is the largest of all garden plants. It becomes a tree. Birds come and rest in its branches." - Matthew 13:31-32...........so as you can see that if you even have the tiniest bit of faith that if you plant it (Like that mustard seed, that Spirit must be planted within us and begin to grow to produce spiritual growth..................it can grow to a large size.
Thank you so much for sharing with us all, I for one am heartened to know its possible to get off, my biggest fear is being stuck with this situation for whatever time is left for me, I have always been fit and active, this is all a new learning curve for me, good luck to you, keep hold of your God's hand.
Hello Dukeyears. I read your profile and what an odd beginning you had. I am encouraging you to be patient and keep your faith. Think of this as a journey that leads to a better place and that with determination to walk through it with God he will get you through it. Do all the things that are helpful, diet, exercise and reflect on what is good. Before you know it the light at the end of the tunnel will appear.
Thank you for your kind encouragement, yes I am of positive mind and still very busy and active, I have faith in nature, if anything having this 'setback' has made me a better person, after my initial symptoms I have become far more aware of the problems of the truly disabled, and find myself thankful that mine is a managable condition. I wish you and all members here a happy holiday and a positive New Year.
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