Rather a vain question

[Rosina1871]

Hi. I know so many of you out there are suffering far more than me so this will appear to be rather a vain question. I have done exceedingly well so far. Down to 4mg without problems and no weight gain apart from my face! Does anyone know at what point the face settles down again. I thought it may have improved by now,

[Hidden]

A very valid question Rosina1871. I'm hoping to see what the views are on this topic so I can comfort myself too!!!

[Smokygirl in reply to Hidden]

And me! 🙃

[bunnymom in reply to Smokygirl]

And me at 6 😀

[Hidden]

It's not necessarily the dose it goes down with in all cases. Mine was all but gone by 10mg, but it was the lower carbs that helped more than anything. I reduced salt and used pink himalayan salt... Don't know if it make a big difference.

It may have gone down further than you think but not be back to your usual. I took photos of my face most weeks and whilst I didn't notice a reduction in the mirror. Side by side photos helped me do a proper assessment. Somewhere... Here it is, from a couple of years ago is a side by side photo of a member before, during and after and responses there may help. So for me low carbs, high fat way of eating.

healthunlocked.com/pmrgcauk...

[Rosina1871 in reply to Hidden]

Thanks poopadoops. I have been so careful with carbs and salt but my face is still definitely wider than it was

[Hidden in reply to Rosina1871]

I have put the post from a while back above.

Maybe you are someone who will lose it once you are off pred. But try 20mg carbs, good carbs a day. Good luck.,🤞

[9lives in reply to Hidden]

Woa !, your first picture you look the image of my sister x I had to do a double take. You very pretty lady xx in all the pictures

I’m hoping my moon face will go too. I’m down to 5- 4.5mg and slowly reducing xx

I’m picture 2 xx at present xx ha ha

Carole x

[Hidden in reply to 9lives]

It's polywotsit not me....

Maybe is related!

[PMRpro Ambassador in reply to 9lives]

It is of Kate Gilbert, who wrote the book and is one of the 5 ladies who "met" on another forum and got together to start the work that resulted in the formation of PMRGCAuk

[9lives in reply to PMRpro]

Silly me , sorry I didn’t realise that.

I’m so glad they got together though and created this site.

I’ve read Kate ‘s book and it’s very informative. Can’t thank them enough for helping us all.

Xxx

Carole

[SnazzyD]

I was the same; no weight gain but face hasn’t got the memo. This can happen. My face started to go down below 10mg. I don’t think it has fully gone back at 1mg but I think I may have become a bit gaunt before diagnosis.

[Rosina1871 in reply to SnazzyD]

Thanks snazzy

[PMRpro Ambassador]

Depends - no real answer I fear. Some people it goes with weight loss, others it persists until they are off pred altogether.

[Rosina1871 in reply to PMRpro]

Thanks PMRpro. Well I’m not alone in this anyway and am grateful that I’m doing well

[Smokygirl]

Me too Rosina 😢 Pred for nine weeks ( PMR starting on15 mg now down to 11.5 ). Two pounds weight gain only as started fairly low carb straight away but now have fat filled puffy jowls and a huge roll of fat around my back at the waist. Really strange!

I am a still a target member of SW but I just hate it all this watery fat and it’s not me in the mirror and yes——vain it may be——but I really care about the way I look.

Yesterday I bought a facial massage roller from The Body Shop. It’s like a tiny rubber paint roller. Who knows if it will help—- worth a try!!

However—— thank goodness Pred is also magic—— what a trade off!! Hugs xxxxx

[Rosina1871 in reply to Smokygirl]

Thanks smokey. Might try that roller. It’s the jowls that are the worst. Xx

[Bridge31 in reply to Smokygirl]

I’m the same as you 8 weeks of Pred. I have the roll of fat round my waist at the back too but the fat that used to be above my bra strap at the back has gone. All very strange. My face doesn’t seem to have got wider but it’s definitely changed. I look 5 years older 😥

I’m fighting really hard to stay at 10 stone 2 on the low carbs. I’m 5’2”.

[Rosina1871 in reply to Bridge31]

Thanks Bridge31. I just have a fatter face. Everywhere else remained the same. Strange. Low carb for me too. 5’5” and 9stone 5lbs

[Smokygirl in reply to Bridge31]

It’s an absolute bugger!!! I asked my son if my face looked different—- he said “ You look much older Mum!!” Lovely! So I’ve aged in 9 weeks!

As for the back roll—- well thank goodness it’s not in front on my tummy! SO strange!

I’m 5’3” and 10 stone 4 , ( I used to be 5ft 4 but I’ve shrunk an inch 😢) Like you, fighting really hard on the low carbs but ravenous all the time!

Keep in touch Bridge—- we can compare notes on our journey! xxx

[Bridge31 in reply to Smokygirl]

It was Heron who described Pred as “your dangerous little friend”...brilliant description.

[HeronNS in reply to Bridge31]

healthunlocked.com/pmrgcauk...

[Bridge31 in reply to Smokygirl]

Our dangerous little friend

[Hellyowl]

My face went down below 10 mg. But I an left with puffiness around my collar bone on my left. The side I had GCA. I have been down as far as 2.5 , I am currently back up to 8 mg. Face still fine but collar bones remains puffy throughout

[kulina]

My moon face disappeared at 6 mg Pred. I had no other fat deposits anywhere else.

[Rosina1871 in reply to kulina]

It’s just my face. Like you no other fat deposits

[tangocharlie]

Mine didn't go until I was off Pred altogether. The good news is that I've had to go back on a low dose of Pred but it hasn't come back. Must have been the initial high doses that caused it. It kept the wrinkles at bay though and I'm looking years younger than my age! The flab around my stomach is taking its time to scarper, but my shape is changing, very slowly. I follow low carb almost keto diet combined with fasts of varying durations.

[Rosina1871]

Thanks tangocharlie