Arthritis pain not relieved by Pred.: I have had to... - PMRGCAuk

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Arthritis pain not relieved by Pred.

Freshmimt
Freshmimt
45 Replies

I have had to give in and put on a BuTrans patch as well as cocodamol, for pain relief.

Most of my pain from PMR has gone but the Pred is not hitting the OA as I expected it would. Any advice would be so helpful, I’m on 15 mg Pred and have been for 4 weeks.

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DorsetLady
DorsetLadyPMRGCAuk volunteer

I found, apart from when I was on very high doses for GCA when all pain was masked, like most that Pred does nothing for OA.

Pred is addressing the inflammation caused by PMR or GCA, and OA does not produce inflammation in the same way as rheumatoid arthritis or psoriatic arthritis do. Those two can be treated by Pred, but it’s not a lot of use in OA.

Stick to the painkillers and patches I’m afraid! Gentle exercise does help, depends where your OA is located.

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Dontwannabesick

My rheumatologist confirmed this. I asked why my back pain was not controlled by pred. He said my back was OA, and not helped by antiinflammatory drugs.

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Freshmimt

Thanks don wannabe sick, just wishful thinking on my part, hoping it would do the trick for both x(love the name) x

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Freshmimt

Thank you Dorsetlady, I was under the impression it would relieve OA as well, just assumed it would,so even though I thought I was doing a good job researching PMR just show me how much I have to learn, greatful thanksx

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HeronNS

I'm sorry to hear you are in so much pain from OA. I found my early dose of pred dealt with all my aches and pains, OA and other associated pains returning as the dose was reduced. I've never taken painkillers for OA although x-rays show I have quite extensive OA in many parts of my skeleton. I avoid nsaids for the reason that these can interfere with cartilage regeneration. And although studies apparently show that glucosamine is ineffective I have taken a high dose for many years (1000 mg twice a day in capsules, not tablets, with food) and believe it has been helpful. I have received physio and faithfully do exercises twice a day. My theory about the glucosamine is simply that studies have never gone on long enough. It isn't a painkiller but more likely a substance which helps to slow down damage caused by OA. I was first diagnosed with OA at age 40, now over 70, and think it was already starting in my neck and feet much earlier.

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piglette
piglette
in reply to HeronNS

I have taken glucosamine for years too. I got some from eBay at one point and was in a lot of pain having taken them (probably duds) then went back to my old supplier, so I have come to the conclusion they do work.

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Freshmimt
Freshmimt
in reply to piglette

Thank you Piglette, have put them on my list x

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Purplecrow

I use high dose salmon oil capsules for inflammation and pain of OA. My nurse friend recommended, and I found some relief within a few days. Just another brick in the wall.....

🙏🏽Jerri

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piping9
piping9
in reply to Purplecrow

what brand of salmon oil pills snd how many s day

i am going to try that

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Purplecrow
Purplecrow
in reply to piping9

Check at your local pharmacy or "health food" store for "wild Alaska Fish oil, "

I usually take 2400 mg daily, for last 4 years. Occasionally I slack off, and my OA flares again.

Use your best judgment about dose, etc, but get a good quality cold water wild salmon or fish oil.

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Freshmimt
Freshmimt
in reply to piglette

Thank you all so much for your help, now maybe I can start the recommended slow taper x

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jinasc
jinasc
in reply to piglette

Unless they are made in UK, Scandinavian countries< Italy, German and France don't trust them.

A certain company, who shall be nameless sells them at a low price, they are made in the USA and about 9 - 10 years ago the FDA put out a notice that some of those were imported from the country beginning with C***a and when tested had ground up seashells in them..................

When diagnosed with GCA my Rheumy stopped my use of Glucosamine & Chondriniton - contra-indication with pred. Check compatibilty with your Pharmacist just in case.

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Freshmimt
Freshmimt
in reply to jinasc

Thank you, jinasc, I’ve a lot to learn x

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piglette
piglette
in reply to jinasc

If you look up the Drugs website it says there are no known interactions with pred and glucosamine. I did have to stop taking glucosamine when I had my hip op as there were contra indications with some of the drugs then. Also if I had been taking Methotrexate I would have had to stop it.

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jinasc
jinasc
in reply to piglette

Yes, I found out a couple of years ago and wondered what had changed from 8 years previously. I was really trying to get across to look at where they are made.

Thank you .

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Hidden
HiddenAmbassador
in reply to piglette

It's weird...I don't take them but I get them for my dog and she is walking better ....so who knows.

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Freshmimt
Freshmimt
in reply to Hidden

Haha, well if it works for your dog, I hope it does the trick for me x

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Hidden
HiddenAmbassador
in reply to Freshmimt

Well I think we can say it's not a placebo effect with her.

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Freshmimt
Freshmimt
in reply to Hidden

Yes, that’s certainly true xx

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Hildalew
Hildalew
in reply to Hidden

A friend of mine told me that vets use glucosamine to treat horses - and that clinched it for her.

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Hidden
HiddenAmbassador
in reply to Hildalew

It's one of those things that is said to work better with...spelling... chondroitin...which comes from sharks. I am veggie so won't take it. These days I add other supplements or drugs reluctantly veggie friendly or not. The dog doesn't care. 🤣🤣🤣

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Blearyeyed
Blearyeyed
in reply to Hidden

I can see you eyeing up the dogs supplements and wondering if you should just try one!😋😂😂😂

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Hidden
HiddenAmbassador
in reply to Blearyeyed

It's a shame I can't put the gif on I am looking at. She has just had her nightly pill followed by her bonio. She would fight me for the bonio ...not so sure about the pill.

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Manchild
Manchild
in reply to Hidden

Awesome! No placebo effect with your dog!

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Hidden
HiddenAmbassador
in reply to piglette

You have to be careful with meds and supplements from China and India as well as some European countries further down the list.

ifpma.org/global-health-mat...

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piglette
piglette
in reply to Hidden

People think because something is “natural” it is harmless, some of the things from China particularly seem to be lethal.

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Hidden
HiddenAmbassador
in reply to piglette

I was reading one and it has arsenic and other dangerous things in it.

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piglette
piglette
in reply to Hidden

They even have steroids in them!

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Hidden
HiddenAmbassador
in reply to piglette

Yes.

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PMRpro
PMRproModerator
in reply to piglette

At high doses at that!!! No wonder they worked ...

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Constance13
Constance13
in reply to Hidden

I could recommend them to a few that I know then.😂😂😂

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Hidden
HiddenAmbassador
in reply to Constance13

🤣🤣🤣 do you think we would be found out??

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Constance13
Constance13
in reply to Hidden

Of course not! Our friends on here would protect us!!! 😂😂😂

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Hidden
HiddenAmbassador
in reply to Constance13

🤣🤣🤣 this message will self destruct in 5 seconds......

Reply
Constance13
Constance13
in reply to Hidden

😂😂

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Purplecrow
Purplecrow
in reply to Hidden

My Mother developed allergy which caused her lips and tongue to swell...just another thing to know.....🤣

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Hidden
HiddenAmbassador
in reply to Purplecrow

Omg. Nightmare. !!!🤪

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Freshmimt
Freshmimt
in reply to HeronNS

Thanks for sound advice Heron, I have had OA widespread for many years, but not tried glucosamine, it’s on my list. X

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HeronNS
HeronNS
in reply to Freshmimt

Some people have told me it upsets their stomach, and I don't remember how it was when I started, lo those many years ago when I think I was getting tablets, but with capsules, and always having it with a meal, I've never had any problems.

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Freshmimt
Freshmimt
in reply to HeronNS

Definitely going to give it a try, pain is getting to me again, horrid blooming thing, isn’t it? X

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HeronNS
HeronNS
in reply to Freshmimt

Give it a few weeks, and also check that your diet is helping you. I seem to remember reading that we need to include healthy fats for good bone/cartilage health. And way back, early on, I read that Vitamin B6 is supposed to help. Not wanting to take just one B vitamin after a bit I started taking the full complex instead, one pill every two days now, but years ago, when I stopped for a while, I think I did feel worse. It's hard to remember after all this time, but I know there's a reason I started taking it again and have never stopped.

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Freshmimt
Freshmimt
in reply to HeronNS

Trying to ditch all the bad stuff, and easier than I thought, Doc says to carry on with my usual supplements as well as the new Vit D and Calcium, I will be rattling at this rate, but if it helps so be it, xx

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Mimma

Only thing I can recommend is 2 tablespoons of apple cider vinegar ( with the mother) in 8 ounces of warm water- first thing each morning. It has helped my OA pain.

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Freshmimt

Thank you Mimma,x

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daworm

I found that the higher doses from 20 to around 12 helped a lot with my “normal OA” aches and pains, now my knees and hips ache like before PMR...I’m at 4 1/2mgs now and using pain meds and ibuprofen 600 for the OA like before....my main complaint now is no energy till afternoon...must be pred withdrawals and adrenal functions not fully firing up.

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