Dexa Scan

[Marjorie237]

DEXA Refusal from GPs surgery.

Refusal for Rheumatologist confirmed (from triage at hospital for appt. Hospital say not PMR and will not see me!

Have had this confirmed over past year because of all the symptoms of PMR and diagnosed by GPs and hundreds of blood tests, scans, X-rays , you name it.

Refused by GP enteric Pred, only on 5g.

So so many conflicting reports from medics. Confirmation this morning from 2 pharmacists re when and how to take 12 different meds after more conflicts from different GPs at surgery.

I know it’s pred making me feel sick and have had vomiting again after a couple of months. Can only be down to Pred as only feel sick when taking this.

“Is it cos I’m old” that they cast you off to fend for yourself as they don’t think your worth the extra cost!!!!!

Grumpy xx

[Hidden]

Not surprised you feel a bit grumpy. If it's not PMR have they suggested what it is??

[Marjorie237 in reply to Hidden]

They said at hosp it could be fibromyalgia! But my symptoms although blood tests not too high all point to PMR.

[PMRpro Ambassador in reply to Marjorie237]

What are your ESR and CRP levels? Do you know? It is appalling when doctors think they can triage without seeing the patient.

[Marjorie237 in reply to PMRpro]

So true, how do they know, especially when they don’t know the correct details. (Just found my notes on my surgery’s records, one other error) in a letter to Rheumatologist requesting appt that was turned down. I was on 10 mg a few months ago then taken of with fairly fast taper. A great few weeks on that! Then given all sorts of pain killers but not worked. So January was put on 5mg but relief not as good as before. Was told to cut that down to 4 then 3 every six weeks.

Suffered so went back on 5mg and told to reduce again in 8 wks to 4. Then another 8 wks to 3.

I am unfamiliar with the ESR and CPR levels. Have loads of results on my surgery notes online so will try and make sense of them soon. Thanks for all your comments.

[Hidden in reply to Marjorie237]

This is a general overview.

practicalpainmanagement.com...

[Hidden in reply to Marjorie237]

What was the highest dose of pred and did it help the pain etc ...because as no doubt you have heard pred does not help fibromylgia at all.

[Hidden in reply to Hidden]

Whoops I have edited this for right condition...pred doesn't help fibro!

[Thelmarina]

Could you change surgery or does it seem too much to take on? You are not being listened to or getting proper medical advice and treatment. This is naff!

[Marjorie237 in reply to Thelmarina]

Suppose I’m a bit wary about changing. Is it the devil you know? I will persevere with requests for rheumie. However, I will have a private consultation if I get any worse. Annoyed with refusal as it’s not like I e lost a fingernail!

Will try to give rants a rest for time being.

[Thelmarina in reply to Marjorie237]

Exactly. I have had no trouble with getting a Dexa scan or appointments with my doctor and rheumie and I’m beginning to realise just how lucky I am. Do let us know how you get on x

[Constance13]

I don't think it's the "extra cost", being naive😏, but I often feel we come to a point in life (being an "oldie" myself) when the doctors come to the conclusion that they can't really help anymore. Which doesn't give them the right to fob you off!! We just sometimes need a friendly face, a sympathetic "ear"!

[PMRpro Ambassador in reply to Constance13]

Not sure I need them to "help more" - just continue to help at the same level without grousing ...

[Constance13 in reply to PMRpro]

Except we all expect that there is something the doctors can do, don't we?

[PMRpro Ambassador in reply to Constance13]

Depends

[Hidden in reply to Constance13]

It will/should come back to haunt them if/when they get older. Sadly by then they retire and that understanding gets lost.

[Constance13 in reply to Hidden]

I have a doctor friend who says "people just don't know how we 'suffer' seeing active happy people we've known for years just fading away".

[Hidden in reply to Constance13]

I can see that in some practices, but suspect in a big city practice like mine with thousands of patients that will happen less frequently. I internally grumbled a bit about the senior Dr at the practice who was there 20plus years since I started at the practice. But I have got to say he knew who I was and if he saw me as he was fluttering around reception he used to ask if I had had flu jab or blood test. He has retired and I think the remaining drs could trip over me 10mins after the appt and not know me.

[PMRpro Ambassador in reply to Hidden]

Some seem able to trip over you DURING an appointment and not know who you are ...

[Hidden in reply to PMRpro]

🤣🤣🤣

[Thomas45 in reply to Constance13]

I don't find that at all. I've just had 2 colonoscopies, one diagnostic as I take Warfarin, the other to remove the polyps found. I've had a letter from the colorectal specialist stating that I will need a repeat colonoscopy in 3 years. I am nearly 74.

[PMRpro Ambassador in reply to Thomas45]

That's because you are already in his system

[Valentina1]

Am so sorry you have been through so much. I am old also and feel the same way I know its no help but I feel I am having the same runaround. My inflammation levels Jan were 160 hence 60mgs of pred. Now down to 15mgs and inflamation levels in the 40s. I now have pred induced diabetes as well as a new anti coagulant. I have still not see a Consultant.

[Marjorie237 in reply to Valentina1]

Sorry to hear your probs, what hope do we have. Thank goodness for all you lovely lot on here.

[clieder]

Are you literally taking the pred with food? Or, could it be some relationship to one of the other 11 drugs you are taking? That is a lot of drugs. It seems if the pred is helping with your pain at 5 mg that a pharmacist should be able to look at that list of drugs and tell you what interacts poorly with what and how to space them out to make the best of all of them. No one should have to vomit from taking pred without an explanation and some help. We may be old but we have lived long enough to know more about life than most advising us, so pick your question, pick your person, and make yourself heard. We are here cheering you on!

[PMRpro Ambassador in reply to clieder]

The trouble is that two drugs may interact in one way - but when you add in others it may change the dynamic altogether, e ven making things that wouldn't normally clash, do so. But a pharmacist should be able to make the best of mixing a load of medications.