Stonecreek-- has the fun started yet? - PMRGCAuk

PMRGCAuk

21,856 members41,472 posts

Stonecreek-- has the fun started yet?

stonecreek profile image
7 Replies

Just learned how to post-- I hope. You folks are much help with all your info. When you tell people you have PMR they say WHAT? But I too said that when the Dr. told me. The first few weeks were so awful! I really thought I was dying. It hit me at 3:00 in the morning and it took me many hours to get out of bed.Then I could not walk bend etc. I receintly got a lift chair so I am prepared. Love this chair.

Taking 5 Pred. I am 81 yrs young. dx about 8months ago. Keep smiling, S

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stonecreek
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7 Replies

Welcome Stonecreek 🌷

Glad to hear you’ve learnt to post & are 81 years young!

Please post any questions or anything you feel we can help you with.

Kind Regards

MrsN

SheffieldJane profile image
SheffieldJane

Lovely to have you aboard!

palewolf profile image
palewolf

Welcome Stonecreek we are all in this together!

stonecreek profile image
stonecreek in reply topalewolf

Thank you so much. You are so right! Do you know how long this will last? I kina think it is forever. Looking back I think I have had it for 30 years or so.

in reply tostonecreek

Ah, if we knew the answer to that question we’d be very happy but unfortunately it lasts as long as it lasts, it’s described as Self Limiting but l think it has a mind of its own!

PMRpro profile image
PMRproAmbassador in reply to

As jinasc has been saying for years - it comes when it wants and it will go when it wants and nothing you can do will alter that!!

palewolf profile image
palewolf in reply tostonecreek

Unfortunately we just don't know, but I guess it will hang around for quite a while. We just have to keep smiling and hope for the best.

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