Briefly I had head pains and tender scalp for 5 weeks or so which did not respond to ordinary painkillers. It got so bad the out of hours GP said I should go to A&E. My bloods were normal and I was prescribed 40mg of pred for 3 days and told to go to visit my GP. (Forgot to say I have been on pred since Dec 2016 for PMR and was down to 2mg).
The headache went after a day so went to see GP who was a locum. She was very rude and dismissive saying she didn't think it was GCA - which she was looking up on computer and reading symptoms aloud whilst I sat there. She asked me what I wanted her to do? I said obviously I didn't want to have to take high dose pred but equally I didn't want to lose my sight. She gave me 2 weeks supply of 40mg pred and a referral to a rheumatologist. She said she had met loads of women who thought they had PMR and wanted to be on steroids!
I was unsure what to do so phoned optician who saw me straight away. He seemed knowledgeable and did a thorough examination and said eyes showed no signs and he thought I hadn't got GCA. So at his suggestion I took 5mg for 3 days and then went back to 2mg and didn't increase to 40mg.
I have slowly reduced to 1mg now and shall stay on this dose for a couple of months if all goes well. My next question is do (if I am Ok) just stop or reduce to alternative days?
Sorry for long post your advice is always appreciated.
I went down to 0.5mg per day, and then using my slow taper came off that dose gently.
It doesn’t sound like much, and the doctors would probably say it’s not necessary, but personally I think the slower the better!
Thanks will take advice.