Hi all, I posted a few days ago regarding pains in the top of my head and sore scalp. This was not responding to a variety of pain killers and got worse on Sunday so I phoned the GP out of hours service who recommended that I go to A&E, which I did.
I was given a thorough check up and bloods were takes for an ESR test? These all came back normal. I was given paracetamol and ibruprofen and told to up my pred to 40mg for 3 days to protect my sight before going to see my GP on Wednesday. If I could not get an appointment I have to go back to A&E. I have to phone the surgery on Wed to get appointment so hopefully I will be successful.
I would be interested to hear the experience of others. I have no temporal tenderness, no problem with eyes or jaw at the moment and since taking the 40mg my headache has gone. I have stopped pain killers as they were not working anyway. Last ones taken this morning and pain has not returned.
So even thought bloods were OK, pain has gone after 2 x 40mg dose, do you think the GP will say it is GCA? If so, what is the average time people have to stay at 40mg, and how quickly can you reduce if all goes well!
I was about to drop from 2mg to 1mg and hoped to be off the pred by early next year (diagnosed Dec 2016 with PMR ). I realize this was probably optimistic but thought I might be one of the lucky ones although abviously my sight is far more important than getting off the pred.
Any information or advice would be gratefully received.