I saw my rheumy yesterday, the one that told me there was nothing wrong with me but age (I am 56), then a month later my left hip collapsed from AVN... who told me there is nothing wrong with my right hip but age, my surgeon told me I am early stages AVN in that hip...
so, yesterday, he told me to either stop taking my pred all together, or come down by 1mg per week... I am currently taking 6mg, and have been trying to taper rather quickly because of the AVN at .5mg every two weeks... he laughed, and said that wasn't fast enough... I said I was worried about adrenal failure, and he said that was a myth.....
I have tried to get a referral to a different rheumy (UK), but he is the top honcho, and, it seems, no-one else wants to go against him...
I am starting a Pain Clinic today, so, am hoping to get a chance to ask them, but might be difficult as it will be everybody's first day and I don't want to hijack it....
Polymialgia is so difficult to manage....
thanks, any opinions are gratefully received... xx