Hi all! I'm a 61yr old female, living in the states. This is my first post. I've been having debilitating pain and stiffness since September 2018. At first, I didn't know what was happening to me. I went from walking 5 miles a day to barely being able to get out of bed. My sister sent me an article about PMR, and that eventually led me to this forum. Thank you for sharing your expertise and experiences!
After bouncing between my GP, Orthopods, and finally a Rheumatologist, I was diagnosed this month with Seronegative RA.
This is based solely on the fact that in July 2018 my Rt knee suddenly (overnight) became stiff, swollen, warm, and painful. X-rays were negative for injury and arthritis. Fluid drawn was negative for infection and pseudo gout. Blood tests: GRP 2.4, SED rate: 36, RA Factor: Neg, ANA: Neg, Anti-CCP: 6 (within normal range 0-19)
Rheumy wouldn't consider PMR. Said it ONLY affects neck and shoulders. Never arms, hips, or thighs. Said when she saw my inflamed knee that was enough for an RA diagnosis. Test results and x-rays didn't matter. Told me to start on 10mg Prednisone and 15mg Methotrexate. I disagreed with the diagnosis, and told her I needed to learn more about MTX before I agreed to take it. I decided not to take the MTX. 10 Pred gave me about 40% relief in 3 days. I then tried 15 Pred. Within 6 hrs/overnight I woke up 90% pain free. Knee included! I stayed on 15 until my next appt...12 blissful days later. She was livid. Said I wasted 2wks on 15 Pred when I should have been on the MTX. Didn't care how well I was feeling. Gave me a final script for (60tabs) 5mg Pred, and told me to be off pred and on MTX by my next appt in a month. Said "You want this to be PMR so it will go away instead of having RA for life." And "Stop reading medical material on the internet!" Needless to say I won't be going back. I have since found out that she has a very poor approval rating with other patients. No wonder why...
I'm now on a 3-6mo wait-list to see a new Rheumy. GP has agreed to prescribe 10mg daily Pred until then. He has treated only 2 cases of PMR in 20 yrs of practice. I've reduced to 11.5 so far. Having some mild overnight stiffness, that goes away fairly quickly once I'm up and about. GP has suggested that I give the MTX a try and see what happens. So that when I see the new Rheumy, I can say I've tried it, and that might possibly eliminate a variable for a PMR diagnosis.
Question. Would any of you take Methotrexate as a trial, even though you felt deep down inside that you don't have RA?
As a side note, my PMR symptoms began within days of getting a flu shot in early September. Coincidence? This was on top of 4 plus years of stress, watching my Mom spiral down with dementia, and currently overseeing her care in a nursing home.
If you've made it this far, I apologise for being so long-winded, and thank you for any input you might want to provide.