Second visit to the consultant today and possibly good news for me.
He’s pretty certain I don’t have PMR. I responded well to the steroids almost instantly.
Starting at 30mg mid August, GP increased it to 40 due to jaw claudication not going away. I had no other GCA symptoms. I’ve now reduced to 12mg in just 3 months, with no major issues.
I’m continuing to reduce now at my own pace. Next consultant visit in January
In the mean time I will continue to make notes of every single odd symptom that occurs, read all the posts on here each morning and keep up all the small changes I’ve tried to make to help the PMR to go away......just in case
BTW ....no clue of what it is that I might have🤔