wrong diagnosis - paying the price **update**

[RedRum1968]

Consultant visit this evening- almost certain PMR but pain in wrists/hands more like inflammatory arthritis (I’m not convinced as I’ve read enough on here and on internet that many people with PMR do have problems with their wrists and hands!). Put back on 15mg and starting the process from scratch. Thanks to everyone that commented on my last post. 😊

[piglette]

Is this a new person you saw? I assume it is not the rheumatologist you mentioned?

[RedRum1968 in reply to piglette]

Yes new consultant 😊

[piglette in reply to RedRum1968]

They seem an improvement on the original rheumatologist.

[PMRpro Ambassador]

That is a good start at least. And slowly does it!

My PMR affected hands and feet - badly, I could barely hold a wine glass at one time! And if I am flaring - it often starts in my wrists,

[Flivoless in reply to PMRpro]

I can echo this. Luckily I've only had one flare but that started in my wrists.

[Bridge31 in reply to PMRpro]

Like your choice of glass 🍷

[DorsetLady PMRGCAuk volunteer]

Lets hope things work out this time….

Maybe have a read through this for info -

healthunlocked.com/pmrgcauk...

[Charlie1boy]

After eighteen months with pmr, and down to five mg of prednisolone, I developed distinct discomfort in both wrists and hands.

After consulting with the Forum, PMRpro suggested a small increase of two mg, and it worked instantaneously. There was no doubt in my mind that pmr was the cause!

Good luck, and I’m pleased you seem to be in a better position now.

,

[jls93]

I also have issues in wrist, hands,feet and ankles. I find there is a distinct difference between joint, tendon and muscle. Sleeping with compression gloves and resting supports /splints for wrists very helpful to how how my mornings. Nothing fancy or expensive amazon . That being said; managing "trigger fingers", joint issues of wrists,hands and thumbs has made a big effect on quality of lifeMarch 2023 had first row of wrist carpels removed "PCR carpectomy" non dominant hand.. it took decades to arrive at the descion because there is no turning back.. hang in there, pursue your health and sometimes there are alot things you can do conservatively to make things better, more comfortable and reduce offensive loading of structures and improve function.

Be well a pursue your health.

Sincerely

[Body_bonkers]

Sounds promising - hope you respond to dose increase. Like you I'm not sure if my hands are PMR or not but time will probably tell