I have been on prednisone for a year , started on 50 Mg , had two flares and am now on 12.5 using the very slow method .
I have never seen a rheumy or had a protein test . Only esr and am not privy to the results without a Dr visit . I feel very much on my own as it comes down to " how you feel " which is really difficult to gauge sometimes .
I was having blood work 2 times a month to try and monitor the inflammation but was told it wasn't necessary . I didn't want to lower my steroid dose if the numbers were rising .
I have positive GCA test results and am told I also have PMR . I have pain between my shoulder blades every morning on rising and it eases off though the day . I limit my activities and stop when I'm tired .
My question is , should I push for test results and a protein test ,which I read is more reliable or just carry on my own ?
I keep a weekly account of my prendisone and would like to add my inflammation reading to judge when the numbers level off or is this not a practical exercise .
I am 78 and have glaucoma ( have several laser surgeries to lower pressure ) because of the prednisone .
I have learned so much through this terrific site and am so thankful to all those who contribute . Also have the great book on GCA and PMR by Kate Gilbert ( got from Amazon ) . I'm in Canada .