Total exhaustion

[Wraysbury]

By 1pm I’m so exhausted that I can barely lift my arms or even move. What’s happening.

[SnazzyD]

Hello,

What dose are you on? i felt like this all the time until I got below 25mg ish.

[Wraysbury in reply to SnazzyD]

I’ve put myself up to 20 from 15 despite Gp advice. Feeling worried

[SnazzyD in reply to Wraysbury]

Is this diagnosis of possible GCA still dragging on then?

[Wraysbury in reply to SnazzyD]

No. The jaw pain went, but I’m feeling so unwell I know I’m not right

[SnazzyD in reply to Wraysbury]

Do you have any other GCA type symptoms at the moment? Has the 20mg changed anything? This condition does have the ability to wipe one out which is horrifying when you’ve been active.

[Wraysbury in reply to SnazzyD]

No. Still feel the same.

[SnazzyD in reply to Wraysbury]

Sorry about the 20 questions. Are you on the Methotrexate, if so, have you had routine blood monitoring recently ie, full blood count, liver, kidney as well as the inflammatory markers?

[Jamie345 in reply to SnazzyD]

I totally agree with you that feeling was a regular occurrence and so fatigued as well I really thought I had something else and that the tests had not revealed ! But I'm now down to 7m and the tapering down was not as bad as I expected, those symptoms do fade away but not completely, I still have pain and can't walk properly but nothing as bad as when this all hit me! So glad to be coming down, hope you feel better soon x

[Wraysbury in reply to SnazzyD]

No

[Wraysbury in reply to SnazzyD]

Yes and I’ve just been told that I’m now in renal failure too

[piglette in reply to Wraysbury]

My gosh, I am so sorry, what does that mean?

[Horizon12 in reply to Wraysbury]

That's all you need hun on top of every thing else. Gentle hugs coming your way.

[Constance13 in reply to Wraysbury]

Listen to your body, not the doctor.

[PMRpro Ambassador]

You are doing too much in the mornings! Pred only manages the inflammation - the rest is up to you with pacing and lifestyle changes. That does vary from time to time.

Who has told you you are in renal failure? On what basis?

[Wraysbury in reply to PMRpro]

The GP. Based on 3 blood tests.

[PMRpro Ambassador in reply to Wraysbury]

Yes - but what were the figures? I've explained in your other post though. Renal failure is a very serious condition and you would probably be requiring dialysis - so to chuck it in in passing at the end of a consultation makes it very unlikely that is how poorly your kidneys are working.

[Wraysbury in reply to PMRpro]

Ok. Thanks I’ll sort it out next wk. Have I posted this elsewhere?

[PMRpro Ambassador in reply to Wraysbury]

Where you talked about the GP and her "You have renal failure..." comment.

[Horizon12]

I know where you are coming from. Just reduced to 10 mg and the chronic fatigue has really hit me hard again.

[Wraysbury]

😩