I'm new here - have recently been diagnosed with PMR. I've been doing a lot of online reading and I came across the research project at Gateshead, looking for people with PMR and/or GCA to volunteer to take part. I emailed saying I'd like to help and I was interested in finding out more. I received a reply today, and there are 2 things that are niggling me:
1. the email just said: "Please return questionnaire. Kind regards X". There was NO "Thank you for getting in touch", "Thank you for your interest". Now I know people are busy, but surely a little bit of courtesy wouldn't go amiss!
2. the attached questionnaire (Word doc) is protected, so you can't complete it online. It will have to be printed out, completed by hand, scanned, then emailed it back!
I noticed that the research project (started in May 2017) needs 500 volunteers, but as of April 2018 they only had 155 volunteers taking part - I wonder if that's partly due to the research project's lack of engagement with prospective volunteers?
Am I just a grumpy old woman? Is it the pred? Is it the PMR? Or am I just being unreasonable?!
(I will email them pointing out my concerns politely, but I'm just letting off steam first!)