Interesting article.... however, nothing we didn't already know, right?
Why don't doctor's mention this?
Prednisone: The Steroid That Can Make You Feel Crazy - PMRGCAuk
Prednisone: The Steroid That Can Make You Feel Crazy
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65 Replies
•
PMRproAmbassador
Many doctors tell patients NOT to read the data sheet - "because if you expect the side effects, you will have them!
If they say so - but it would be an idea if, when their patients demonstrate side effects, they were able to identify them!
And as the article says "knowledge is power" and heavens forbid that balance may shift especially with doctors who also suffer from short man syndrome.
• in reply toPMRpro
Never been told that myself!
Angiejnz• in reply to
Great and good to hear, then you haven't got the attitude that comes with the chip that's bigger than the man of short stature who has to be an a#@e to get himself noticed!! 😎
• in reply toAngiejnz
Hey. I was 5' 7 at my peak! You seem to have some agenda here yourself!
Angiejnz• in reply to
You're right, I'm 5 ft 9 and had issues with short men being affronted they couldn't be dominating. It also may be a NZ thing as I didn't make up the name, it's a well known syndrome, who knows 🤔
• in reply toAngiejnz
Not another syndrome!! There are hundreds of them! Or maybe thousands! ATB
On a recent visit to my local pharmacy, I overheard a lady ask for a print out of side effects for an anti-depressant. ( So much for privacy laws). The pharmacist said, of course, I am obligated to give it when asked, but with the caveat that " sometimes knowing side effects becomes a self fulfilling prophecy."
I don't look at side effects until I have one.
I wouldn't bother - all online! But yes - except it is often a good idea to be aware...
I don't think my GP mentioned all the side effects, but the leaflets in the packets of tablets did and continue to do!
".....Mood changes (feeling depressed or 'high'); ....serious mental health problems; feeling depressed, including thinking about suicide; feeling high (mania) or moods that go up and down; feeling anxious, having problems sleeping, difficulty in thinking or being confused and losing your memory; feeling, seeing or hearing things which do not exist. Having strange or frightening thoughts, changing how you act or having feelings of being alone....."
Need I say more? Just ask my OH!
• in reply toRugger
Hahahahahaha... I'll bet our OH's could write a much more information, realistic, comprehensive patient-information-leaflet than they supply now!
SheffieldJane• in reply to
From a very safe distance methinks.
Through the window of my padded cell perhaps, safer for him there
bunnymom• in reply to
And it wouldn't be put as nicely either 😀
• in reply toRugger
I heard some amazing conversations between the Blackbirds!! A friend mistook a door stop for a mouse while in hospital! I could go on!!!
SheffieldJane• in reply to
Those are delightful ones. Especially being able to speak blackbird.
• in reply toSheffieldJane
You don't know what they were saying!!!
• in reply to
...but they know! That is all that matters!
• in reply to
Oh my! I got up to go to toilet in middle of night I was 100% sure there were 3 huge Horseflies, all lined up in perfect formation on the wall! Thought it was weird, but closed bedroom door and went back to bed. Next morning I realised it was my DIY project that had gone awry!!!!
The feelings of being alone in my case are because for the most part, I am. It’s an interesting one to include - probably because this is an isolating, little understood illness.
Even if you're not alone, you can still feel alone. My husband does not speak anything but French. I speak proficiently, but not fluently. He has no problem out and about, finding what he needs or we need.
But I wanted to be sure he understood this illness before marrying me. So I did a Google translation. He has taken over all household tasks, certainly understands the fatigue.
However, whenever he mentions prednisone, he calls it "parmesan." I have no heart to correct him because it always gives me a laugh.
And I do wear a medical ID bracelet which he knows to bring attention to should we wind up in a hospital and I can't speak for myself, with the phone #s of my doctor, brother and daughter who do understand the disease in English.
On to the next " parmesan "taper.
• in reply toChristophene47
Oooooo, I love that, "parmesan!" It almost make sit sounds sweet and tolerable!
If you can see or hear things, how do you know they are not there? 😱
• in reply toCT-5012
Certainly true with a train coming towards you CT! Don't want to test that though!!
Angiejnz• in reply to
Despite the blackbirds telling you it's the ice cream van so you'd better catch it
CT-5012• in reply to
Used to have a track safety cert but its now out of date 😊
• in reply toCT-5012
I agree!
“Have I gone mad? I'm afraid so.
You're entirely Bonkers.
But I will tell you a secret,
All the best people are.”
~ Lewis Carroll, Alice in Wonderland
I was sure I was bad-tempered and blamed prednisone. Asked my GP about it. She said were you bad-tempered before.
Um, yes.
We moved onto another subject.
Many of the alleged pred side effects are effects of unmanaged PMR. Maybe they remain effects of managed PMR?
Yes agree PMRpro - a lot of the stuff we ascribe to 'Pred' - you know our old adage here: 'Blame the Pred !!' could just as easily be a consequence of the disease if not as well factors like our essential temperament - which is of course necessarily impacted by everything we have to steer through. Then anyway life does become more challenging for most of us even 'healthy' people as we age - after all we won't (unless hit by a bus or similar) die 'healthy'. Not to be morbid but while yes for some Pred can create extra difficulties it also alleviates so many others - like (in addition to PMR pain) those nice little aches & pains which are likely just 'normal ageing' but which I have not 'missed' at all due to nearly 18 months on Pred. Mood - well it can swing up and down and at high doses be very strange - but for most of us at moderate to lower doses - I am yet to be convinced it IS all about the Pred - I think it is most often just about 'life'...
I think I've got your doctor's twin brother, he said that too or words to that effect except I remember him mentioning the term nutty....
• in reply tosondya
LOVE IT!!!!
• in reply tosondya
Hahahahahahahahaha!
My gp said at first when prescribing to tell OH I could possibly be a bit crazy , his reply when told was , how I will I know , there will be no change there then !
• in reply toChrob
: )
Hmm.. I’m absolutely fine. I never tell home truths to my husband since being on Pred. I don’t wander the garden with a torch at night talking to random hedgehogs. 🦔But recently the cat 🐈 starting writing posts.
The doc didn’t warn me about that ( or any side effects btw).
😂😂😂😂😂
Lol 😂😹
• in reply topeace_lover
Love it! I thought your posts had a different writing style!
Angiejnz• in reply to
?? Are you saying the cat writes in italics???😼 On pawpous?
Must be the heat. 😂😂😂😂😂
Oh! Thanks for posting this, it puts it in a nutshell really. Definitely didn’t have enough euphoria.
But enough euphoria; sick and euphoric we are as we trip down the rabbot hole and we are always late for that very important date with who? Dr. Oz?
Prednisone caused a colleague of mine had to be corralled and taken to the hospital. Apparently she was in her front yard screaming at no one in particular. Her kindly husband was somehow able to subdue her. The nurse at the hospital said, “Oh yes, steroid psychosis; bring her back (into the examination room).” 👀
• in reply toCanygirl61
WOW!
I've had sleep psychosis, if there is such a thing, according to OH and euphoria....
Shall we do a group 'leave our head to science' donation?
My rheumy, Dr Pamela Mangat at the Royal Free Hospital, took the trouble to warn me during our first meeting that a few people experience psychological problems when taking pred. She advised me to seek help immediately if I felt depressed or anxious in any way.
• in reply toMarijo1951
That's really good!
Yes, she is very caring about her patients - only drawback she's a bit too insistent about the bisphosphonates...
• in reply toMarijo1951
Ahhhhh, well... there's always something, isn't there? You can resist though... it just gets tiring! : (
Yes, why don't they? Because it is all they have to help with diagosis and relief. But we should be informed, and sign an informed consent document, acknowledging the good, the bad and the ugly.
Although I would not know, is it harder to get off Prednisone or heroin?
• in reply toChristophene47
Good question????
Dear mamic,
I can't say I feel crazy (now on prednisone 22 months), But my daughter, who has RA, said it did make her crazy. She got paranoid about her husband who was opening mail with a letter opener near her; she interpreted his letter opening as a threat, she called the police!
The police came, and they were both arrested for domestic violence although there had been no violence. Charges dropped by judge, thankfully.
Years later, they divorced anyway. Oh well....
• in reply toChristophene47
OMG! ...was he "gaslighting" her, was was she "really" paranoid???
You may never know! : o
I'll never know and don't want to. But she got off all RA meds, and know relies on med marijuana for flares
9/15 13 years ago, my granddaughter, was born 9
weeks premature on life support. Touch and go. Today, she is cute as a button and an honor roll student.
That being said, a few months after her birth, my daughter became very ill; eventually rheumatoid arthritis was diagnosed; she refuses all meds and relies on medical marijuana for flares.
PS Was tried on an infusion of Remicaid and could not breathe. That was the final straw for her.
9/15 is a date we all will remember.
• in reply toChristophene47
Wow! I wish her (and you) the very best) what a journey.....
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