I don't know how I found this group but I'm so glad I did. I live in a small town in South Central Alaska with very few support groups of any kind let alone one for PMR patients. I read someone's post several nights ago and was too tired to comment. They talked about being under 50 and docs not treating them for PMR. I went through hell the first 18 months, my general doc suspected it but the other specialists wouldn't believe it because of my age and my c-reactive protein numbers wouldn't go down on Prednisone for a long time. Finally I got into a rheumy (the waiting lists are long here like other parts of the world) he said I was an 'outlier' but not the only one. I am so grateful for finding him!
Other 'outlier' symptoms and problems have emerged that I can probably go into, in time, in this group. But for now I just want to say THANK YOU to all of you that contribute and help to support each other on this rocky road we travel. Like most of us I would guess, I have really bad days and not as bad days. I need to keep fighting to keep my head above water because I have a wonderful husband and amazing 12 year old twin girls that don't deserve to suffer my ups and downs. Maybe I can lay a little burden down here and I hope to carry some of others when I can.
As W.H. Auden said...“We are all here on earth to help others: what on earth the others are here for, I don't know.”
I'm tapering Prednisone again, any advice is welcome.