Yesterday, I saw the Endo Consultant. Sadly, not the lovely locum, of last year, but THE man himself. Remember, the one who diagnosed me by LETTER!. Anyway, he was nice. Says I am managing my Addison's Disease well. I asked if I could taper back to 4mg, and he said no lower than 5mg, and to do it s-l-o-w-l-y. I told him I would taper by 0.5mg. He also said I should ring 111 and let them know I am an AD patient, so, in the event of a crisis, I would be a priority call, for the paramedics to come out and give the injection.I asked whether my adrenals would ever recover fully? He said it was difficult, but probably not. I told him I was fine with taking Pred forever. He stressed the inmportance of getting immediate help, if vomiting/diarrhoea. In other cases of being unwell, to double the Pred dose. I have been doing the latter. I am on 7mg Pred. I will start the taper after my abdominal scan, next Monday, and the result. I had a Dexa last week, and will ask GP for result, today, i.o. waiting a month to see him!
The consultant never once said you look well, and a good listener. No hurry to get me out.Said I only need to come once a year, as I am doing well, and know what to do if in crisis.
I told him I didn't have an emergency kit, at home, nor could I face even learning how to self-inject...yes, I know...chicken. He was ok about that, and then mentioned 111.
I told him I had NO FATIGUE, prior to the Synacthen test, after it, and even now. I do not get tired. Simples.He said my baseline was far too low.I said that was the only time I knew I was ill...after the test result.A good appt with a good Endo, who LISTENED!
An alarming visit: Rheumy suggested infusing with 500 mg per day for 4 days after I've already been tapering for 4 months
Appt after 2nd bloods
Tapering from pred
painkilling spinal injections
What a Journey
